Person-Centered Care in the Home Setting for Parkinson’s Disease: Operation House Call Quality of Care Pilot Study
| Autor: | Ashok Sriram, Nawaz Hack, Umer Akbar, Michael S. Okun, Irene A. Malaty, Amanda Thompson-Avila, Amanda Eilers, Ihtsham Haq, Nelson Hwynn, Angela Hardwick, Erin H. Monari |
|---|---|
| Jazyk: | angličtina |
| Rok vydání: | 2015 |
| Předmět: |
Occupational therapy
medicine.medical_specialty Pediatrics Movement disorders Quality management Article Subject business.industry Neuroscience (miscellaneous) Neuropsychology MEDLINE medicine.disease lcsh:RC346-429 Psychiatry and Mental health Rating scale medicine House call Neurology (clinical) Neurosurgery Medical emergency medicine.symptom business lcsh:Neurology. Diseases of the nervous system Research Article |
| Zdroj: | Parkinson's Disease, Vol 2015 (2015) Parkinson's Disease |
| ISSN: | 2042-0080 2090-8083 |
| Popis: | Objective. (1) To evaluate the feasibility of implementing and evaluating a home visit program for persons with Parkinson’s disease (PD) in a rural setting. (2) To have movement disorders fellows coordinate and manage health care delivery.Background. The University of Florida, Center for Movement Disorders and Neurorestoration established Operation House Call to serve patients with PD who could not otherwise afford to travel to an expert center or to pay for medical care. PD is known to lead to significant disability, frequent hospitalization, early nursing home placement, and morbidity.Methods. This was designed as a quality improvement project. Movement disorders fellows travelled to the home(s) of underserved PD patients and coordinated their clinical care. The diagnosis of Parkinson’s disease was confirmed using standardized criteria, and the Unified Parkinson’s Disease Rating Scale was performed and best treatment practices were delivered.Results. All seven patients have been followed up longitudinally every 3 to 6 months in the home setting, and they remain functional and independent. None of the patients have been hospitalized for PD related complications. Each patient has a new updatable electronic medical record. All Operation House Call cases are presented during video rounds for the interdisciplinary PD team to make recommendations for care (neurology, neurosurgery, neuropsychology, psychiatry, physical therapy, occupational therapy, speech therapy, and social work). One Operation House Call patient has successfully received deep brain stimulation (DBS).Conclusion. This program is a pilot program that has demonstrated that it is possible to provide person-centered care in the home setting for PD patients. This program could provide a proof of concept for the construction of a larger visiting physician or nurse program. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
|