Patient experience with family history tool: analysis of patients' experience sharing their family health history through patient-computer dialogue in a patient portal
| Autor: | Hollis B Kowoloff, Bradley H. Crotty, Charles Safran, Warner V. Slack, Adarsha S. Bajracharya |
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| Rok vydání: | 2018 |
| Předmět: |
0301 basic medicine
Adult Male medicine.medical_specialty Health Informatics Disease 030105 genetics & heredity Ambulatory Care Information Systems Research and Applications 03 medical and health sciences User-Computer Interface Young Adult 0302 clinical medicine Patient Portals Surveys and Questionnaires Patient experience medicine Electronic Health Records Humans Medical history 030212 general & internal medicine Family history Medical History Taking Family health history Aged Family Health Attitude to Computers Patient portal Middle Aged Family medicine Female Patient Participation Psychology Consumer health informatics Experience sharing |
| Zdroj: | J Am Med Inform Assoc |
| ISSN: | 1527-974X |
| Popis: | Objective The collection and use of a family health history are important for assessing the patient’s risk of disease, but history taking is often impeded by practical barriers in the office. Provision for patient-computer dialogue, linked with the electronic health record, may enable patients to contribute their history while bypassing these barriers. We sought to assess the patient experience using such a tool. Materials and Methods We linked the family history module of a computer-based medical history to the patient portal of a large academic health system. The interview consisted of 39 primary questions with a predetermined high test-retest reliability. Patients’ results were structured and summarized, and available within their electronic health record. Patients optionally completed a survey about their experience. We inductively analyzed free-text responses collected between 2014 and 2016. Results Among 97 781 patient portal users, 9562 patients accessed and 4223 patients completed the family medical history interview. Of these patients, 1451 completed our survey. Main themes that were identified included (1) patient empowerment, (2) anticipated value, (3) validity concerns, (4) privacy concerns, and (5) reflections on patient-computer dialogue. Patients also provided suggestions for the improvement of future family history tools. Discussion Patients providing their family health information is an example of collaborative electronic work with clinicians and was seen as valuable by those who participated. Concerns related to contextual information and uncertainty need to be addressed. Conclusions Patient-computer dialogue to collect family medical history empowered patients and added perceived value and efficiency to the patient experience of care. |
| Databáze: | OpenAIRE |
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