Surveillance life and the shaping of ‘genetically at risk’ chronicities in Denmark
| Autor: | Heinsen, Laura Louise, Wahlberg, Ayo, Petersen, Helle Vendel |
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| Předmět: |
Risk
Oncology medicine.medical_specialty Colorectal cancer Denmark Faculty of Social Sciences 03 medical and health sciences 0302 clinical medicine Arts and Humanities (miscellaneous) Internal medicine medicine Humans cancer 030212 general & internal medicine 030505 public health business.industry Anthropology Medical chronicity Public Health Environmental and Occupational Health Cancer Colonoscopy General Medicine medicine.disease Colorectal Neoplasms Hereditary Nonpolyposis Lynch syndrome 3. Good health Increased risk Anthropology Healthy individuals surveillance Hereditary Cancer 0305 other medical science business hereditary |
| Zdroj: | University of Copenhagen Anthropology & Medicine Heinsen, L L, Wahlberg, A & Petersen, H V 2022, ' Surveillance life and the shaping of ‘genetically at risk’ chronicities in Denmark ', Anthropology & Medicine, vol. 29, no. 1, pp. 29-44 . https://doi.org/10.1080/13648470.2021.1893654 |
| DOI: | 10.1080/13648470.2021.1893654 |
| Popis: | Today, in the field of hereditary colorectal cancer in Denmark, more than 40,000 identified healthy individuals with an increased risk of cancer are enrolled in a surveillance program aimed at preventing cancer from developing, with numbers still growing. What this group of healthy individuals has in common is lifelong regular interaction with a healthcare system that has traditionally been geared towards treating the acutely and chronically ill. In this article, we explore how people living with an inherited elevated risk of colorectal cancer orient themselves towards their families' and their own predispositions as well as the lifelong surveillance trajectories that they have embarked upon - what we call surveillance life. Unlike prior critiques of predictive genetic testing as generative of 'pre-patients' or 'pre-symptomatically ill', we suggest that for those enrolled in lifelong surveillance programmes in welfare state Denmark, the relevance of risk fluctuates according to certain moments in life, e.g. at family reunions, when a close relative falls ill, in the time leading up to a surveillance colonoscopy or when enduring the procedures themselves. As such, rather than characterising surveillance life in terms of 'living with chronic risk' we show how 'genetically at risk' chronicities take shape as persons come to terms with a disease that possibly awaits them leading them to recalibrate familial bonds and responsibilities while leading lives punctuated by regular medical check-ups. |
| Databáze: | OpenAIRE |
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