Cancer Pain and Patient Education: Strategy, Implementation, Difficulties and Opportunities of EFFADOL, a Regional Collaborative Programme
Autor: | Aline Le Chevalier, Claire Delorme, Franck Le Caer, Maud Gicquère, Virginie Prevost, Bénédicte Clarisse, Alexandra Leconte, Marie-Christine Grach, Lauriane Fourel |
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Rok vydání: | 2020 |
Předmět: |
Health Personnel
03 medical and health sciences 0302 clinical medicine Quality of life (healthcare) Patient Education as Topic Nursing Neoplasms medicine Humans Prospective Studies 030212 general & internal medicine Set (psychology) Modality (human–computer interaction) business.industry Public Health Environmental and Occupational Health Chronic pain Cancer Pain Pain management medicine.disease Strategy implementation Caregivers Oncology 030220 oncology & carcinogenesis business Cancer pain Patient education |
Zdroj: | Journal of Cancer Education. 37:1089-1098 |
ISSN: | 1543-0154 0885-8195 |
Popis: | While pain remains a burden for many cancer patients, their active involvement in dealing with it through therapeutic patient education (TPE) has proved effective in overcoming hurdles to pain management. This article describes how a regional TPE programme devoted to cancer pain was set up, as well as the difficulties and opportunities encountered during its implementation. Ten nurse-doctor pairs from the chronic pain units of Lower Normandy, after being trained in TPE, designed and built the EFFADOL (Ensemble Faire Face A la DOuLeur [Cope together with pain]) programme. They collaboratively developed the pedagogical, evaluation and communication tools used in the programme. After the educational diagnosis step, patients are able to follow three sessions in order to acquire the following skills: (1) understanding the different types of pain, (2) understanding pain treatments and their adverse reactions and (3) optimally managing pain on a daily basis. Patients can ask a relative to join the sessions and can choose their preferred modality (individual and/or collective sessions). Programme implementation and the importance of communicating with oncologists and independent health professionals are discussed. The programme, which is available to patients close to home, meets their needs as previously assessed through a regional prospective survey. Difficulties to include patients and opportunities to address them are identified. The programme's limitations mainly concern its organization, structure and communication issues. The main challenge remains the overhaul of care practices and the role of the caregiver to allow patient autonomy. |
Databáze: | OpenAIRE |
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