Sport and exercise genomics: the FIMS 2019 consensus statement update
| Autor: | Yannis P. Pitsiladis, Jeroen Swart, Jane T. Seto, Ioanna Verdouka, Antonia Karanikolou, James L. J. Bilzon, Maurizio Casasco, Victoriya Badtieva, Masashi Tanaka, Michiko Dohi, Guan Wang, Bernd Wolfarth, Mats Börjesson, Michael Geistlinger, Fabio Pigozzi, Norbert Bachl, Richard Twycross-Lewis, Theodora Papadopoulou, Kumpei Tanisawa, Luigi Di Luigi |
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| Rok vydání: | 2020 |
| Předmět: |
medicine.medical_specialty
Sports medicine education Privacy laws of the United States Physical Therapy Sports Therapy and Rehabilitation Genomics Review genetic testing 03 medical and health sciences 0302 clinical medicine Political science medicine Humans Data Protection Act 1998 genetics Orthopedics and Sports Medicine Genetic Privacy genes Exercise SWOT analysis 030304 developmental biology Statement (computer science) 0303 health sciences biology Athletes Health Policy 030229 sport sciences General Medicine Precision medicine biology.organism_classification Engineering ethics Sports |
| Zdroj: | British Journal of Sports Medicine |
| ISSN: | 1473-0480 0306-3674 |
| Popis: | Rapid advances in technologies in the field of genomics such as high throughput DNA sequencing, big data processing by machine learning algorithms and gene-editing techniques are expected to make precision medicine and gene-therapy a greater reality. However, this development will raise many important new issues, including ethical, moral, social and privacy issues. The field of exercise genomics has also advanced by incorporating these innovative technologies. There is therefore an urgent need for guiding references for sport and exercise genomics to allow the necessary advancements in this field of sport and exercise medicine, while protecting athletes from any invasion of privacy and misuse of their genomic information. Here, we update a previous consensus and develop a guiding reference for sport and exercise genomics based on a SWOT (Strengths, Weaknesses, Opportunities and Threats) analysis. This SWOT analysis and the developed guiding reference highlight the need for scientists/clinicians to be well-versed in ethics and data protection policy to advance sport and exercise genomics without compromising the privacy of athletes and the efforts of international sports federations. Conducting research based on the present guiding reference will mitigate to a great extent the risks brought about by inappropriate use of genomic information and allow further development of sport and exercise genomics in accordance with best ethical standards and international data protection principles and policies. This guiding reference should regularly be updated on the basis of new information emerging from the area of sport and exercise medicine as well as from the developments and challenges in genomics of health and disease in general in order to best protect the athletes, patients and all other relevant stakeholders. |
| Databáze: | OpenAIRE |
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