Effective public involvement in the HoST-D Programme for dementia home care support: From proposal and design to methods of data collection (innovative practice)
| Autor: | Paul Clarkson, Clarissa Giebel, Brenda Roe, David Britt, A.J. Hodgson |
|---|---|
| Rok vydání: | 2017 |
| Předmět: |
Sociology and Political Science
03 medical and health sciences 0302 clinical medicine Nursing Intervention (counseling) Humans Medicine Dementia 030212 general & internal medicine Reference group Data collection 030214 geriatrics business.industry Data Collection Social Support General Social Sciences General Medicine medicine.disease Home Care Services Transparency (behavior) Caregivers Research Design Accountability Patient Participation Element (criminal law) business Host (network) |
| Zdroj: | Giebel, C, Roe, B, Hodgson, A, Britt, D & Clarkson, P 2017, ' Effective public involvement in the HoST-D Programme for dementia home care support : from proposal and design to methods of data collection (innovative practice) ', Dementia . https://doi.org/10.1177/1471301216687698 |
| ISSN: | 1741-2684 1471-3012 |
| DOI: | 10.1177/1471301216687698 |
| Popis: | Public involvement is an important element in health and social care research. However, it is little evaluated in research. This paper discusses the utility and impact of public involvement of carers and people with dementia in a five-year programme on effective home support in dementia, from proposal and design to methods of data collection, and provides a useful guide for future research on how to effectively involve the public. The Home SupporT in Dementia (HoST-D) Programme comprises two elements of public involvement, a small reference group and a virtual lay advisory group. Involving carers and people with dementia is based on the six key values of involvement – respect, support, transparency, responsiveness, fairness of opportunity, and accountability. Carers and people with dementia gave opinions on study information, methods of data collection, an economic model, case vignettes, and a memory aid booklet, which were all taken into account. Public involvement has provided benefits to the programme whilst being considerate of the time constraints and geographical locations of members. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
|