Methodological and ethical challenges while conducting qualitative research on spirituality and end of life in a Muslim context: a guide to novice researchers
| Autor: | Nasreen Lalani, Gulnar Ali |
|---|---|
| Rok vydání: | 2020 |
| Předmět: |
Advanced and Specialized Nursing
Terminal Care 030504 nursing Context (language use) Islam Spiritual distress Ethics Research Death 03 medical and health sciences 0302 clinical medicine Reflexivity Spirituality Humans 030212 general & internal medicine 0305 other medical science Construct (philosophy) Psychology Social psychology End-of-life care Qualitative Research Meaning (linguistics) Qualitative research |
| Zdroj: | International journal of palliative nursing. 26(7) |
| ISSN: | 2052-286X |
| Popis: | Abstract Spirituality could be understood as a personal belief, a relation with sacred, divine experience, a sense of purpose and meaning towards life, authenticity and connectedness. It is a continually evolving, highly complex, contextual, subjective, and sensitive construct. A continuous development is seen around understanding about spirituality and spiritual concepts, such as spiritual experiences, spiritual pain and spiritual distress, especially among patients and families at the end of life. The concepts, values, attitudes, and beliefs around spirituality, spiritual needs and expressions vary among different individuals, cultures, and religions. There is a dearth of literature around spirituality, especially among Muslim patients and families at the end of life. The complexities around the concept of spirituality in the literature raise several ethical and methodological concerns for a novice researcher while planning and conducting a study on spirituality during end-of-life care in a hospice setting, especially among a Muslim population. This paper aims to share some of the methodological and ethical challenges that can be faced by qualitative researchers while conducting research around spirituality and end-of-life care in an Islamic/Muslim context. Major challenges include defining the term spirituality, spirituality and culture, communication, power relations, language and translation, recruitment and selection of the participants, emotional distress, and reflexivity and reciprocity. Having an in-depth understanding of these challenges can guide researchers to address these issues adequately in their spirituality research in a Muslim context. |
| Databáze: | OpenAIRE |
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