The landscape of systemic lupus erythematosus in Brazil: An expert panel review and recommendations

Autor: Elizabeth McElwee, Odirlei André Monticielo, Morton Scheinberg, Ricardo Machado Xavier, Mariana Rico Restrepo, Evandro Mendes Klumb, Valderílio Feijó Azevedo, Viviane Angelina de Souza
Rok vydání: 2021
Předmět:
Zdroj: Lupus
Repositório Institucional da UFRGS
Universidade Federal do Rio Grande do Sul (UFRGS)
instacron:UFRGS
ISSN: 1477-0962
0961-2033
DOI: 10.1177/09612033211030008
Popis: PurposeThe objective of this review is to address the barriers limiting access to diagnosis and treatment of systemic lupus erythematosus (SLE) and lupus nephritis (LN) in Brazil, specifically for patients in the public healthcare system, arguably those with the least access to innovation.DesignA selected panel of Brazilian experts in SLE/LN were provided with a series of relevant questions to address in a multi-day conference. During the conference, responses were discussed and edited by the entire group through numerous drafts and rounds of discussion until a consensus was achieved.ResultsThe authors propose specific and realistic recommendations for implementing access to innovative diagnostic tools and treatment alternatives for SLE/LN in Brazil. Moreover, in creating these recommendations, the authors strived to address barriers and impediments for technology adoption. The multidisciplinary care required for SLE/LN necessitates the collective participation of all involved stakeholders.ConclusionA great need exists to expand the adoption of innovative diagnostic tools and treatments for SLE/LN not only in Brazil but also in most countries, as access issues remain an urgent demand. The recommendations presented in this article can serve as a strategy for new technology adoption in other countries in a similar situation.
Databáze: OpenAIRE
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