Parent Perspectives on Readiness for Discharge Home after Neonatal Intensive Care Unit Admission
| Autor: | Adam B. Goldin, Maria Cho, Mehul V. Raval, Madelene J. Ottosen, Anne Kim Mackow, Loren Berman |
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| Rok vydání: | 2018 |
| Předmět: |
Adult
Male Parents Health Knowledge Attitudes Practice Neonatal intensive care unit Emotional support health care facilities manpower and services education Discharge home Infant Newborn Diseases law.invention 03 medical and health sciences Young Adult 0302 clinical medicine Nursing law Professional-Family Relations 030225 pediatrics Daily practice Intensive Care Units Neonatal Knowledge sources Medicine Humans 030212 general & internal medicine Qualitative Research business.industry Infant Newborn Infant Transitional Care Middle Aged Patient Discharge Conceptual framework Content analysis Pediatrics Perinatology and Child Health Infant Care CLARITY Female business Stress Psychological |
| Zdroj: | The Journal of pediatrics. 205 |
| ISSN: | 1097-6833 |
| Popis: | Objective To explore the parent perspective on discharge home from the neonatal intensive care unit (NICU). Study design We interviewed parents of NICU graduates with a range of demographic characteristics and medical complexities to explore parent perspectives on readiness for discharge. Interviews were transcribed and coded by a 6-member team. We performed content analysis to identify themes and develop a family-centered conceptual framework around readiness for NICU discharge. Results We interviewed a total of 15 parents who experienced NICU stays with 18 infants. Parents who have experienced NICU discharge have a spectrum of needs that evolve from the time the child is in the NICU, at time of discharge, and at home afterward. These needs consistently centered around 5 themes—communication, parent role clarity, emotional support, knowledge sources, and financial resources. Conclusions Parents described many ways the system could have better prepared them and connected them with essential resources. Summarizing the voices of the parents who participated in this study, we have compiled a series of practical recommendations for clinicians to use in daily practice to help parents feel prepared and confident for the transition home from the NICU. |
| Databáze: | OpenAIRE |
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