Translation and validation of the Life Satisfaction Index for Adolescents scale with neuromuscular disorders: LSI-A Brazil
| Autor: | Edmar Zanoteli, M.B.D. Resende, Valdecir Antonio Simon, Margarete Andreozzi Vaz Pereira Simon, Umbertina Conti Reed |
|---|---|
| Jazyk: | angličtina |
| Rok vydání: | 2017 |
| Předmět: |
musculoskeletal diseases
doenças neuromusculares medicine.medical_specialty Adolescent Psychometrics Duchenne muscular dystrophy Personal Satisfaction neuromuscular disorders lcsh:RC321-571 03 medical and health sciences 0302 clinical medicine Physical medicine and rehabilitation Quality of life Cronbach's alpha Reference Values Surveys and Questionnaires Confidence Intervals medicine Humans Translations 030212 general & internal medicine Muscular dystrophy Child lcsh:Neurosciences. Biological psychiatry. Neuropsychiatry validation studies Reproducibility of Results Neuromuscular Diseases Spinal muscular atrophy medicine.disease SMA Confidence interval Neurology quality of life Child Preschool qualidade de vida Physical therapy Neurology (clinical) estudos de validação Psychology Brazil 030217 neurology & neurosurgery |
| Zdroj: | Arquivos de Neuro-Psiquiatria, Volume: 75, Issue: 8, Pages: 553-562, Published: AUG 2017 Arquivos de Neuro-Psiquiatria, Vol 75, Iss 8, Pp 553-562 Arquivos de Neuro-Psiquiatria v.75 n.8 2017 Arquivos de neuro-psiquiatria Academia Brasileira de Neurologia instacron:ABNEURO |
| Popis: | Objective To validate the Life Satisfaction Index for Adolescents (LSI-A) scale, parent version and patient version, for Duchenne muscular dystrophy (DMD), spinal muscular atrophy (SMA) and limb-girdle muscular dystrophy (LGMD). Methods The parent version of the instrument was divided into Groups A, B, C and D; and the patient version, divided into B, C and D. For the statistical calculation, the following tests were used: Cronbach’s α, ICC, Pearson and the ROC Curve. Results The parent and patient versions of the instrument are presented, with the following results in the overall score, respectively: Cronbach’s α, 0.87 and 0.89; reliability, r 0.98 and 0.97; reproducibility, ICC 0.69 and 0.80; sensitivity, 0.78 and 0.72; specificity, 0.5 and 0.69; and accuracy, 64% and 70.4%. Conclusion According to the validity and reproducibility values, the LSI-A Brazil parent and patient versions, are clinically useful to assess quality of life in DMD, SMA or LGMD and may also be useful for other neuromuscular disorders. RESUMO Objetivo Validar a escala Life Satisfaction Index for Adolescents (LSI-A) versão pais e versão paciente para doenças neuromusculares. Método O instrumento versão pais foi dividido nos Grupos A,B, C e D; e paciente, em B, C e D. Para cálculo estatístico utilizou-se os testes α de Cronbach, CIC, Pearson e Curva ROC. Resultados Valor de Cronbach versão pais e paciente no escore geral, 0.87 e 0.89; confiabilidade,0.98 e 0.97;reprodutibilidade,entre 0.59 e 0.69 e, entre 0.58 e 0.80; sensibilidade, 0.78 e 0.72; especificidade, 0.5 e 0.69; e acurácia, 64% e 70.4% respectivamente. Conclusão Conforme a validade e reprodutibilidade, o LSI-A Brasil versão pais e paciente é útil clinicamente para avaliar a Qualidade de Vida da Distrofia Muscular de Duchenne, Amiotrofia Espinhal Progressiva ou Distrofia Muscular tipo Cinturas e pode ser usado para outras doenças neuromusculares. |
| Databáze: | OpenAIRE |
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