How Does Comprehensive Care Impact Life of Pediatric Patients With Hemophilia? Results From a Center in a Developing Country
| Autor: | Laura Villarreal-Martínez, Marcela Cantú-Moreno, José A Garza, Marbely Quiroga-Treviño, Ileana Velasco-Ruiz, Sulia E Pope-Salazar, Domingo Garay-Mendoza, Atenas Meléndez-Aguirre, Marisol Ibarra-Ramírez |
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| Rok vydání: | 2019 |
| Předmět: |
Male
Pediatrics medicine.medical_specialty Adolescent Health Status Psychological intervention Developing country Hemophilia A 03 medical and health sciences 0302 clinical medicine Quality of life Multidisciplinary approach Surveys and Questionnaires Humans Medicine Child Mexico business.industry Gold standard Hematology University hospital Treatment Outcome Oncology Child Preschool 030220 oncology & carcinogenesis Pediatrics Perinatology and Child Health Quality of Life Female business Psychosocial 030215 immunology Patient education |
| Zdroj: | Journal of Pediatric Hematology/Oncology. 41:601-605 |
| ISSN: | 1077-4114 |
| DOI: | 10.1097/mph.0000000000001575 |
| Popis: | BACKGROUND Quality of life (QoL) has been included as a marker of treatment effectiveness in pediatric patients with chronic diseases. We believe that frequent multidisciplinary interventions and patient education could lead to an improvement in QoL. AIMS Determine the QoL and economic impact of monthly interventions in multidisciplinary treatment. MATERIALS AND METHODS The Haemo-QoL questionnaire was applied to patients who attended the hemophilia center of the University Hospital "Dr. Jose Eleuterio Gonzalez," Monterrey, Mexico, at the time of enrollment and 1 year later. RESULTS Male patients between 4 and 16 years diagnosed with hemophilia were included. The score results presented are based on Haemo-QoL versions that classify patients by their age group: group 1 (4 to 7 y) and group 2 (8 to 12 y). Statistical significant improvement was observed in the overall score (sociodemographic, psychosocial, etc.) after 1 year of follow-up in both groups (P |
| Databáze: | OpenAIRE |
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