The dynamics of quality of life in ALS patients and caregivers
| Autor: | Suzanne C. Segerstrom, Abbey R. Roach, Alyssa J. Averill, Edward J. Kasarskis |
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| Rok vydání: | 2007 |
| Předmět: |
Gerontology
Adult Male Time Factors Demographics media_common.quotation_subject Health Status Disease Quality of life Reference Values Adaptation Psychological medicine Personality Humans Longitudinal Studies Amyotrophic lateral sclerosis General Psychology media_common Aged Aged 80 and over Disease progression Amyotrophic Lateral Sclerosis Middle Aged medicine.disease Psychiatry and Mental health Health psychology Caregivers Well-being Disease Progression Quality of Life Female Psychology Clinical psychology |
| Zdroj: | Annals of behavioral medicine : a publication of the Society of Behavioral Medicine. 37(2) |
| ISSN: | 1532-4796 |
| Popis: | Quality of life (QOL) in people with amyotrophic lateral sclerosis (ALS) and their caregivers may depend on disease progression, premorbid characteristics (e.g., personality or demographics), or idiosyncratic effects (e.g., life events unrelated to the disease). Furthermore, effects may differ for patients and caregivers; physical decline may impact the caregiver more than the patient.The present study examined QOL in ALS patients and their caregivers over the course of the illness.Longitudinal data from ALS patients (N = 55) and caregivers (N = 53) yielded estimates of the sources of and changes over time in total QOL as well as individual domains (psychological existential, physical, and social) as measured by the McGill Quality of Life Questionnaire.For both patients and caregivers, about half of QOL variance emerged from stable individual differences. Passage of time did not affect QOL in patients, but total QOL and particularly QOL related to physical symptoms declined over time in caregivers. Gender was mostly unrelated to QOL in patients and caregivers, but younger caregivers had lower QOL across a number of domains.Low QOL among ALS patients is likely due to pre-existing individual differences, whereas both individual differences such as demographics (e.g., age) and disease progression are likely to affect QOL among caregivers. |
| Databáze: | OpenAIRE |
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