Community Data Collection with Children of Mothers Living with HIV: Boundaries of the Researcher Role
| Autor: | Nada M. Goodrum, Schell M Hufstetler, Lisa Armistead, Rebecca Hill LeCroix |
|---|---|
| Jazyk: | angličtina |
| Rok vydání: | 2017 |
| Předmět: |
Male
Health (social science) Self Disclosure Adolescent Mothers 050109 social psychology HIV Infections Risk Assessment Article Developmental psychology Ethics Research Suicidal Ideation 03 medical and health sciences 0302 clinical medicine Documentation Professional Role Nursing Acquired immunodeficiency syndrome (AIDS) Child of Impaired Parents Intervention (counseling) medicine Community psychology Humans Psychology 0501 psychology and cognitive sciences Child Suicidal ideation Applied Psychology Service (business) business.industry Depression Data Collection 05 social sciences Public Health Environmental and Occupational Health medicine.disease Mental health Research Personnel 030227 psychiatry Vignette Female medicine.symptom business |
| Popis: | The TRACK-II program is a multi-site, community-based randomized controlled trial evaluating an intervention to assist mothers living with HIV (MLH) in disclosing their HIV status to their young children. Many participants—both mothers and children—reported significant depression and/or suicidal ideation, a phenomenon that presented ethical challenges. This article focuses on participants at one site (Atlanta). Through the vignette of “Jordan,” we describe ethical challenges that may arise when faced with the responsibility of maximizing participants’ safety while maintaining the boundaries of the researcher role. Guided by community psychology values, our team has taken measures within our role as researchers to empower and protect children and mothers endorsing suicidal ideation. For example, we have relied on relationships with community-based organizations and AIDS service organizations to connect HIV-affected families to mental health services. Further, we have expanded our system of documentation in order to follow up adequately with families at risk, and we track family resources in order to promote a strengths-based framework. We have solicited families’ feedback about their supports and needs in order to understand how we may best serve them by connecting them to the resources they report needing most and empowering them to care for themselves. |
| Databáze: | OpenAIRE |
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