European Electronic Personal Health Records initiatives and vulnerable migrants: A need for greater ethical, legal and social safeguards
| Autor: | Lars Øystein Ursin, Helena Siipi, Markus Frischhut, Ursela Barteczko, Gabriele Werner-Felmayer, Shai Linn, Dušanka Krajnović, Vojin Rakić, John Saunders, Heike Felzmann, Oliver Feeney, Silvia Zullo |
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| Přispěvatelé: | Silvia Zullo, Oliver Feeney, Gabriele Werner‐Felmayer, Helena Siipi, Markus Frischhut, Ursela Barteczko, Lars Øystein Ursin, Shai Linn, Heike Felzmann, Dušanka Krajnović, John Saunders, Vojin Rakić |
| Jazyk: | angličtina |
| Rok vydání: | 2020 |
| Předmět: |
Health (social science)
Beneficial use Internet privacy Social issues migration Vulnerable Populations Bioethics electronic personal health records ethical legal and social issues (ELSI) medical records migration Health care issues (ELSI) values Electronic Health Records Humans Personal health European Union Electronic personal health records Transients and Migrants Medical records Refugees vulnerabilities business.industry Health Policy Medical record Bioethics Migration values Data sharing Europe Issues ethics and legal aspects ethical medical records Health Records Personal Information and Communications Technology ELSI Ethical legal and social issues Vulnerabilities electronic personal health records Business legal and social bioethics |
| Zdroj: | Developing World Bioethics |
| Popis: | The effective collection and management of personal data of rapidly migrating populations is important for ensuring adequate healthcare and monitoring of a displaced peoplesâ health status. With developments in ICT data sharing capabilities, electronic personal health records (ePHRs) are increasingly replacing less transportable paper records. ePHRs offer further advantages of improving accuracy and completeness of information and seem tailored for rapidly displaced and mobile populations. Various emerging initiatives in Europe are seeking to develop migrant-centric ePHR responses. This paper highlights their importance and benefits, but also identifies a number of significant ethical, legal and social issues (ELSI) and challenges to their design and implementation, regarding (1) the kind of information that should be stored, (2) who should have access to information, and (3) potential misuse of information. These challenges need to be urgently addressed to make possible the beneficial use of ePHRs for vulnerable migrants in Europe. |
| Databáze: | OpenAIRE |
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