Perceive, Recall, Plan and Perform (PRPP)-Assessment Based on Parent-Provided Videos of Children with Mitochondrial Disorder: Action Design Research on Implementation Challenges
| Autor: | Marieke Lindenschot, Imelda J.M.de Groot, Maria W.G. Nijhuis-van der Sanden, Esther M.J. Steultjens, Maud J.L. Graff, Saskia Koene |
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| Rok vydání: | 2023 |
| Předmět: |
Parents
All institutes and research themes of the Radboud University Medical Center Mitochondrial Diseases Occupational Therapy Activities of Daily Living Rehabilitation Pediatrics Perinatology and Child Health Humans Physical Therapy Sports Therapy and Rehabilitation General Medicine Child Healthcare improvement science Radboud Institute for Health Sciences [Radboudumc 18] |
| Zdroj: | Physical and Occupational Therapy in Pediatrics, 43, 74-92 Physical and Occupational Therapy in Pediatrics, 43, 1, pp. 74-92 |
| ISSN: | 0194-2638 |
| Popis: | Contains fulltext : 291161.pdf (Publisher’s version ) (Open Access) AIMS: Performing the Perceive, Recall, Plan and Perform (PRPP)-Assessment, using video material of everyday life, seems sensible to lower the patient burden, enhance ecological validity, and provide care at a distance. However, receipt of adequate video material is not self-evident and assessing videos can be challenging. Therefore, this study aims to optimize the process of gaining video material and to optimize the PRPP-Assessment based on parent-provided videos. METHODS: An action design research method was used, focusing on implementation of the PRPP-Assessment based on parent-provided videos within the care of children with a mitochondrial disorder or similar symptoms. RESULTS: Five cycles were conducted. To receive input, the cycles used videos of nine children performing activities, written feedback, and semi-structured interviews and focus groups comprising parents (n = 13), a teacher (n = 1), occupational therapists (n = 16), and other professionals (n = 2) . This led to successful implementation of the PRPP-Assessment. General lessons were learned on (1) instructing parents; (2) handling video material; (3) PRPP-Assessment based on parent-provided videos; and (4) PRPP-Assessment of children (with limited functional abilities). CONCLUSIONS: Lessons learned should be implemented in practice and are incorporated into a manual to guide the implementation of video-based observations with PRPP-Assessment in practice. |
| Databáze: | OpenAIRE |
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