Cross-informant agreement between adolescents with myelomeningocele and their parents
| Autor: | Melissa H. Bellin, Constance F. Buran, Kathleen J. Sawin, Laura Vasel, Elizabeth Builta, Timothy J. Brei |
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| Rok vydání: | 2005 |
| Předmět: |
Attractiveness
Adult Male Parents Meningomyelocele Adolescent media_common.quotation_subject Culture Decision Making Convenience sample Friends Developmental psychology Ventriculoperitoneal shunts Developmental Neuroscience Perception Surveys and Questionnaires Humans Child Social Behavior media_common Observer Variation Self Efficacy Self Care Friendship Cross-Sectional Studies Pediatrics Perinatology and Child Health Personal Autonomy Social competence Functional status Female Neurology (clinical) Psychology Lumbosacral joint |
| Zdroj: | Developmental medicine and child neurology. 48(3) |
| ISSN: | 0012-1622 |
| Popis: | The development of self-management skills by adolescents with myelomeningocele is an ongoing process. Previous studies lack consensus about what data can be accurately obtained from adolescents. This cross-sectional study using a convenience sample of 66 adolescent-parent dyads evaluated whether adolescents with myelomeningocele and their parents are interchangeable reporters of data. Adolescents' ages ranged from 12 to 21 years with a mean of 16 years 2 months (SD 2y 8mo); 38 were female, 28 were male; 30% had thoracic lesions, 32% had lumbar lesions, 15% had lumbosacral lesions, 23% had sacral lesions, and 85% had ventriculoperitoneal shunts. In this analysis, participants reported activities (decision-making, household responsibility, and friendship activities) and select outcomes (functional status, self-management, and social competence) similarly. However, differences emerged in reports of beliefs (adolescent future expectations, family variables) and select developmental competencies (school, job, athletic, behavioral, attractiveness, and romantic appeal). Analysis using t-test and interclass correlations supported a pattern of adolescent-parent agreement in areas of observable behavior and differences in more subjective domains such as perception of developmental competencies. |
| Databáze: | OpenAIRE |
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