Caring for people with severe myalgic encephalomyelitis: An interpretative phenomenological analysis of parents' experiences
Autor: | Martina Mihelicova, Zachary A. Siegel, Abigail Brown, Meredyth Evans, Leonard A. Jason |
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Rok vydání: | 2015 |
Předmět: |
Adult
Male Parents Psychotherapist Adolescent media_common.quotation_subject Emotions Psychological intervention Severity of Illness Index Article 03 medical and health sciences Young Adult 0302 clinical medicine Perception Adaptation Psychological Humans Narrative 030212 general & internal medicine Meaning (existential) Child Applied Psychology health care economics and organizations Qualitative Research media_common Identity change Fatigue Syndrome Chronic Narration Interpretative phenomenological analysis Uncertainty social sciences Middle Aged humanities 030227 psychiatry Feeling Caregivers Child Preschool Female Empathy Psychology Qualitative research |
Zdroj: | Journal of health psychology. 21(12) |
ISSN: | 1461-7277 |
Popis: | Experiences of parents who care for sons or daughters with severe myalgic encephalomyelitis are rarely discussed within the literature. Narratives of parent–carers in Lost Voices from a Hidden Illness were analyzed using interpretative phenomenological analysis. This study aimed to give voices to those who care for individuals with myalgic encephalomyelitis and are often stigmatized and inform future research supporting parent–carers. Results included themes of identity change, guilt, feeling like outsiders, uncertainty, changing perceptions of time, coping mechanisms, and improvement/symptom management. Findings could inform the development of carer-focused interventions and provide vital information to health professionals about parent–carers’ lived experience. |
Databáze: | OpenAIRE |
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