Managing women‐specific bleeding in inherited bleeding disorders: A multidisciplinary approach
| Autor: | Roseline d'Oiron, Ellen Laan, Karin P M van Galen, Eveline P. Mauser-Bunschoten, Lotte Haverman, Manon E L Degenaar, Dietje E. Fransen van de Putte, Rezan A. Kadir, Petra Elfvinge, Lorynn Teela |
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| Přispěvatelé: | Obstetrics and Gynaecology, APH - Aging & Later Life, Amsterdam Reproduction & Development (AR&D), Paediatric Psychosocial Care, APH - Mental Health, APH - Methodology, Graduate School |
| Rok vydání: | 2020 |
| Předmět: |
medicine.medical_specialty
post-partum haemorrhage and reproduction haemophilia Hemorrhage 030204 cardiovascular system & hematology Hemophilia A Haemophilia Menstruation von willebrand disease 03 medical and health sciences 0302 clinical medicine Quality of life (healthcare) Pregnancy post‐partum haemorrhage and reproduction Multidisciplinary approach Health care medicine Humans Child Menorrhagia Genetics (clinical) bleeding disorder business.industry Original Articles Hematology General Medicine medicine.disease Women with Bleeding Disorders heavy menstrual bleeding Gynecology Psychosexual development Family medicine Quality of Life Menarche Female Original Article women business Psychosocial 030215 immunology |
| Zdroj: | Haemophilia, 27(3), 463-469. Wiley-Blackwell Haemophilia |
| ISSN: | 1365-2516 1351-8216 |
| DOI: | 10.1111/hae.14221 |
| Popis: | Introduction Multidisciplinary management of women‐specific bleeding is important to preserve quality of life, healthy reproduction and social participation of women and girls with bleeding disorders (WBD). Aim To support appropriate multidisciplinary care for WBD in haemophilia treatment centres. Methods Two case examples are presented and management issues discussed from different health care perspectives, including the nurse, patient, psychologist, gynaecologist, geneticist, psychosexual therapist and haematologist. Results Woman with bleeding disorders may experience heavy menstruation from menarche onwards. This has a physical and psychosocial impact requiring a multidisciplinary approach. If a woman with an inherited bleeding disorder desires to become pregnant, preconception counselling is essential, to discuss genetic diagnosis, state of the art treatment options for the bleeding disorder in question and possible choices to prevent having an affected child, as well as maternal bleeding risks during conception, delivery and the post‐partum period. Conclusion Adequate management and good education of WBD requires a patient‐centred multidisciplinary approach with experienced specialists in a haemophilia treatment centre. |
| Databáze: | OpenAIRE |
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