Communication and decision-making regarding children with critical cardiac disease: a systematic review of family preferences
| Autor: | Erin P. Williams, Renee D. Boss, Kathryn Neubauer, Pamela Donohue |
|---|---|
| Rok vydání: | 2018 |
| Předmět: |
Parents
medicine.medical_specialty Heart disease Heart Diseases Decision Making Context (language use) Disease 030204 cardiovascular system & hematology Global Health 03 medical and health sciences High morbidity 0302 clinical medicine 030225 pediatrics Physicians medicine Humans Family Child Qualitative Research business.industry Communication General Medicine medicine.disease Preference Survival Rate Family medicine Pediatrics Perinatology and Child Health Morbidity Cardiology and Cardiovascular Medicine business Inclusion (education) Pediatric population Qualitative research |
| Zdroj: | Cardiology in the young. 28(10) |
| ISSN: | 1467-1107 |
| Popis: | Critical heart disease in the pediatric population is associated with high morbidity and mortality. Research around the most effective communication and decision-making strategies is lacking. This systematic review aims to summarise what is known about parent preference for communication and decision-making in children with critical heart disease. Database searches included key words such as family, pediatric heart disease, communication, and decision-making. A total of 10 studies fit our inclusion criteria: nine were qualitative studies with parent interviews and one study was quantitative with a parent survey. We found three main themes regarding physician–parent communication and decision-making in the context of paediatric heart disease: (1) amount, timing, and content of information provided to parents; (2) helpful physician characteristics and communication styles; and (3) reinforcing the support circle for families. |
| Databáze: | OpenAIRE |
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