Controversies about cervical cancer screening: A qualitative study of Roma women's (non)participation in cervical cancer screening in Romania

Autor: Andreea Itu, Kåre Moen, Ofelia Suteu, Trude Andreassen, Elisabete Weiderpass, Aida Tincu, Florian Nicula, Minodora Bumbu, Giske Ursin
Jazyk: angličtina
Rok vydání: 2017
Předmět:
Adult
medicine.medical_specialty
Health (social science)
Roma
Cervical cancer-screening
User involvement
Uterine Cervical Neoplasms
Participant observation
Cervical cancer screening
03 medical and health sciences
0302 clinical medicine
History and Philosophy of Science
Cancer screening
Health care
medicine
Humans
Mass Screening
030212 general & internal medicine
Early Detection of Cancer
Qualitative Research
Aged
Cervical cancer
Controversies
business.industry
VDP::Medical disciplines: 700::Clinical medical disciplines: 750::Oncology: 762
Romania
Participation
VDP::Medical disciplines: 700::Health sciences: 800
Focus Groups
Middle Aged
Patient Acceptance of Health Care
medicine.disease
Focus group
VDP::Medisinske Fag: 700::Klinisk medisinske fag: 750::Onkologi: 762
VDP::Medisinske Fag: 700::Helsefag: 800
030220 oncology & carcinogenesis
Family medicine
Interessement
Physical therapy
Women's Health
Female
business
Qualitative research
ISSN: 0277-9536
Popis: Source at https://doi.org/10.1016/j.socscimed.2017.04.040. Romania has Europe's highest incidence and mortality of cervical cancer. While a free national cervical cancer-screening programme has been in operation since 2012, participation in the programme is low, particularly in minority populations. The aim of this study was to explore Roma women's (non)participation in the programme from women's own perspectives and those of healthcare providers and policy makers. We carried out fieldwork for a period of 125 days in 2015/16 involving 144 study participants in Cluj and Bucharest counties. Fieldwork entailed participant observation, qualitative interviewing and focus group discussions. A striking finding was that screening providers and Roma women had highly different takes on the national screening programme. We identified four fundamental questions about which there was considerable disagreement between them: whether a free national screening programme existed in the first place, whether Roma women were meant to be included in the programme if it did, whether Roma women wanted to take part in screening, and to what degree screening participation would really benefit women's health. On the background of insights from actor-network theory, the article discusses to what degree the programme could be said to speak to the interest of its intended Roma public, and considers the controversies in light of the literature on patient centred care and user involvement in health care. The paper contributes to the understanding of the health and health-related circumstances of the largest minority in Europe. It also problematizes the use of the concept of “barriers” in research into participation in cancer screening, and exemplifies how user involvement can potentially help transform and improve screening programmes.
Databáze: OpenAIRE
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