Health self-management, transition readiness and adaptive behavior in persons with cerebral palsy or myelomeningocele
| Autor: | Michael Evitts, Seth Warschausky, Edward A. Hurvitz, Jacqueline N. Kaufman, William Schutt |
|---|---|
| Rok vydání: | 2017 |
| Předmět: |
Adult
Male 050103 clinical psychology 030506 rehabilitation Transition to Adult Care Meningomyelocele Adolescent Physical Therapy Sports Therapy and Rehabilitation PsycINFO Cerebral palsy Developmental psychology 03 medical and health sciences Young Adult Surveys and Questionnaires Prospective memory Adaptation Psychological medicine Humans 0501 psychology and cognitive sciences Young adult Adaptive behavior Self-management Spina bifida Cerebral Palsy Self-Management 05 social sciences Rehabilitation Neuropsychology medicine.disease Psychiatry and Mental health Clinical Psychology Female 0305 other medical science Psychology Clinical psychology |
| Zdroj: | Rehabilitation psychology. 62(3) |
| ISSN: | 1939-1544 |
| Popis: | Purpose/objective This study was conducted to examine the associations between generic and condition-specific health self-management and levels of adaptive behavior in 2 groups of transition-age youth with congenital neurodevelopmental conditions. Method The sample included 43 adolescents/young adults diagnosed with cerebral palsy (CP) and 36 with spina bifida/myelomeningocele (SBM), ages 13-29, mean age 18.96 (4.77), 51.9% female. Health self-management was assessed with the Transition Readiness Assessment Questionnaire (TRAQ) completed by the child, and the Kennedy Krieger Independence Scales-Spina Bifida (KKIS-SB) completed by the parent/guardian. The Adaptive Behavior Assessment System (ABAS-II) completed by the parent/guardian was used to assess levels of adaptive behavior. Results There were significant group differences in condition-specific health self-management, including lower KKIS-SB Initiation of Routines and KKIS-SB Prospective Memory scores in the group with SBM. Those differences were no longer significant when scoring was modified to account for item applicability. Group differences in generic health self-management and adaptive behavior were not significant. There were significant differences in the correlations between health self-management instruments and ABAS-II composite scores. Conclusions For youth with congenital neurodevelopmental conditions who are in the transition to adulthood, there are important condition-specific self-management needs that are not captured by measuring generic transition readiness or adaptive behavior. Findings highlight the need for clinicians to assess health self-management needs from multiple perspectives, utilizing generic and condition-specific measures that can inform targeted interventions and supports for optimal independence. (PsycINFO Database Record |
| Databáze: | OpenAIRE |
| Externí odkaz: |
|