The health-care experiences of families given the prenatal diagnosis of trisomy 18
| Autor: | L V Walker, Vanessa K. Dalton, Victoria J. Miller |
|---|---|
| Rok vydání: | 2008 |
| Předmět: |
Male
medicine.medical_specialty media_common.quotation_subject Decision Making Empathy Prenatal diagnosis Genetic Counseling Trisomy Abortion Interviews as Topic Pregnancy Professional-Family Relations Prenatal Diagnosis Health care medicine Humans Quality (business) Psychiatry media_common Quality of Health Care business.industry Obstetrics and Gynecology Abortion Induced Professional-Patient Relations Health Services Middle Aged medicine.disease Content analysis Patient Satisfaction Family medicine Pediatrics Perinatology and Child Health Female business Follow-Up Studies |
| Zdroj: | Journal of perinatology : official journal of the California Perinatal Association. 28(1) |
| ISSN: | 0743-8346 |
| Popis: | The objective of this study was to examine parent-reported experiences in the health care system after receiving the prenatal diagnosis of trisomy 18 and to identify factors that contribute to satisfaction with care. Nineteen families who received the diagnosis between 2002 and 2005 were given semistructured telephone interviews. Of the 19 families, 11 continued the pregnancy while the remaining 8 chose induced abortion. Classical content analysis was utilized to identify themes among subject responses. We identified several specific aspects of care as key in either being highly satisfied or dissatisfied: expressions of empathy from provider, continuity of care, communication, valuing the fetus and participation in medical decision-making. Aspects of care that were identified as reasons for dissatisfaction are potentially modifiable by training, education or team-based approaches. Further studies are necessary to determine how we can improve the quality of services during prenatal diagnosis. |
| Databáze: | OpenAIRE |
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