Using Participatory Design Methodologies to Co-Design and Culturally Adapt the Spanish Version of the Mental Health eClinic: Qualitative Study

Autor: Álvaro Andrés Navarro-Mancilla, Tracey A Davenport, Laura Ospina-Pinillos, Elizabeth M. Scott, Ian B. Hickie, Antonio Mendoza Diaz
Rok vydání: 2019
Předmět:
Adult
Mental Health Services
Telemedicine
020205 medical informatics
cultural characteristics
patient satisfaction
Adolescent
Hispanics
international students
Health Informatics
transients and migrants
02 engineering and technology
Health informatics
ethnic groups
03 medical and health sciences
cultural competency
Young Adult
0302 clinical medicine
quality of health care
Participatory design
Knowledge translation
Health care
0202 electrical engineering
electronic engineering
information engineering
eHealth
medical informatics
Humans
030212 general & internal medicine
Latinos
Language translation
Qualitative Research
community-based participatory research
Language
Medical education
Original Paper
business.industry
Mental health
primary health care
Mental Health
Research Design
consumer health information
Female
telemedicine
patient participation
Psychology
business
patient preference
Zdroj: Journal of Medical Internet Research
ISSN: 1438-8871
Popis: Background The Mental Health eClinic (MHeC) aims to deliver best-practice clinical services to young people experiencing mental health problems by making clinical care accessible, affordable, and available to young people whenever and wherever they need it most. The original MHeC consists of home page with a visible triage system for those requiring urgent help; a online physical and mental health self-report assessment; a results dashboard; a booking and videoconferencing system; and the generation of a personalized well-being plan. Populations who do not speak English and reside in English-speaking countries are less likely to receive mental health care. In Australia, international students have been identified as disadvantaged compared with their peers; have weaker social support networks; and have higher rates of psychological distress. This scenario is acquiring significant relevance as Spanish-speaking migration is rapidly growing in Australia, and the mental health services for culturally and linguistically diverse populations are limited. Having a Spanish version (MHeC-S) of the Mental Health eClinic would greatly benefit these students. Objective We used participatory design methodologies with users (young people aged 16-30 years, supportive others, and health professionals) to (1) conduct workshops with users to co-design and culturally adapt the MHeC; (2) inform the development of the MHeC-S alpha prototype; (3) test the usability of the MHeC-S alpha prototype; (4) translate, culturally adapt, and face-validate the MHeC-S self-report assessment; and (5) collect information to inform its beta prototype. Methods A research and development cycle included several participatory design phases: co-design workshops; knowledge translation; language translation and cultural adaptation; and rapid prototyping and user testing of the MHeC-S alpha prototype. Results We held 2 co-design workshops with 17 users (10 young people, 7 health professionals). A total of 15 participated in the one-on-one user testing sessions (7 young people, 5 health professionals, 3 supportive others). We collected 225 source documents, and thematic analysis resulted in 5 main themes (help-seeking barriers, technology platform, functionality, content, and user interface). A random sample of 106 source documents analyzed by 2 independent raters revealed almost perfect agreement for functionality (kappa=.86; P Conclusions Through a research and development process, we co-designed and culturally adapted, developed and user tested, and evaluated the MHeC-S. By translating and culturally adapting the MHeC to Spanish, we aimed to increase accessibility and availability of e-mental health care in the developing world, and assist vulnerable populations that have migrated to English-speaking countries.
Databáze: OpenAIRE
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