Parental discussion of G6PD deficiency and child health: implications for clinical practice
| Autor: | Lori H. Erby, Yue Guan, Debra L. Roter, Wuh-Liang Hwu, Ai-Chu Huang, Yin-Hsiu Chien |
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| Rok vydání: | 2013 |
| Předmět: |
Adult
Male Parents Health Knowledge Attitudes Practice medicine.medical_specialty Cross-sectional study Taiwan MEDLINE Child Welfare Child health law.invention Young Adult law Surveys and Questionnaires medicine Humans Parent-Child Relations Young adult Child Psychiatry business.industry Infant Middle Aged Health Surveys Self Care Clinical Practice Cross-Sectional Studies Glucosephosphate Dehydrogenase Deficiency Child Preschool Pediatrics Perinatology and Child Health CLARITY Female business Psychosocial Patient education Clinical psychology |
| Zdroj: | Archives of Disease in Childhood. 99:251-255 |
| ISSN: | 1468-2044 0003-9888 |
| DOI: | 10.1136/archdischild-2013-304867 |
| Popis: | ObjectiveParents are encouraged to discuss self-care with children affected by G6PD deficiency; however, little is known about the extent or impact of these discussions on the physical and psychosocial health of these children. The purpose of this study was to examine the nature of parental–child discussions of G6PD deficiency self-care and their relationship to child health.MethodsA quantitative cross-sectional survey of 178 Taiwanese parents of children with G6PD deficiency was conducted. The extent of parental–child self-care discussions was assessed in regards to coverage of nine key topics. Parent's G6PD deficiency status, knowledge of haemolytic anaemia symptoms and reported G6PD deficiency education from providers were examined as correlates of parental discussion. Child health was assessed with the child health questionnaire-parent form (Chinese version) and a 13-item haemolytic anaemia symptom list.ResultsSelf-care discussions were positively correlated with parental G6PD deficiency status (β=2.08, p=0.03), accurate identification of haemolytic anaemia symptoms (β=0.18, p=0.01), the thoroughness and clarity of patient education (β=0.14, pConclusionsParental–child G6PD deficiency self-care discussions are associated with better child health, and parental involvement in these discussions is facilitated by the thoroughness and clarity of patient education received from providers. |
| Databáze: | OpenAIRE |
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