Family caregiving for adults with sickle cell disease and extremely high hospital use
| Autor: | William H. Sledge, Daniel F. Weisberg, Shan-Estelle Brown |
|---|---|
| Rok vydání: | 2016 |
| Předmět: |
Adult
Male Parents medicine.medical_specialty Coping (psychology) Anemia Sickle Cell Disease Severity of Illness Index Interviews as Topic Young Adult 03 medical and health sciences Social support 0302 clinical medicine Adaptation Psychological medicine Humans 030212 general & internal medicine Spouses Psychiatry Qualitative Research Applied Psychology Hospital use business.industry Chronic pain Middle Aged medicine.disease Hospitalization Caregivers 030220 oncology & carcinogenesis Chronic Disease Female Family Relations business |
| Zdroj: | Journal of Health Psychology. 21:2893-2902 |
| ISSN: | 1461-7277 1359-1053 |
| DOI: | 10.1177/1359105315588215 |
| Popis: | This study investigated coping with chronic illness in the adult patient–caregiver relationship for sickle cell disease, marked by debilitating acute and chronic pain. One-on-one interviews ( N = 16) were conducted with eight primary caregivers of eight adults with extremely high hospital use, severe sickle cell disease with hospital admissions several times monthly over successive years. Caregivers were predominantly parents; two were romantic partners. Caregivers attributed disruptions to the disease’s variability, tensions in how much support to give, and adults’ inability to fulfill parental obligations. Both groups expressed fears of patients’ increasing age, declining health, and early death. Targeted counseling and resilience training is recommended. |
| Databáze: | OpenAIRE |
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