The Development of the Bronx Community Research Review Board: A Pilot Feasibility Project for a Model of Community Consultation
| Autor: | Francisco Martin del Campo, Hal Strelnick, Joann Casado, Paulette Spencer |
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| Jazyk: | angličtina |
| Rok vydání: | 2013 |
| Předmět: |
Research design
Program evaluation Community-Based Participatory Research Health (social science) Sociology and Political Science Community-based participatory research Pilot Projects Education 03 medical and health sciences Practical Tools 0302 clinical medicine Nursing Informed consent Medicine Humans 030212 general & internal medicine Cooperative Behavior Program Development Human services Informed Consent 030505 public health business.industry Planning Techniques General Medicine Bioethics Focus group Community-Institutional Relations 3. Good health Health Planning Models Organizational Community health Commentary Feasibility Studies New York City 0305 other medical science business Program Evaluation |
| Popis: | Background: The Bronx Community Research Review Board (BxCRRB) is a community–academic partnership (CAP) between the Albert Einstein College of Medicine and The Bronx Health Link (BHL). Rather than asking clinical investigators to create their own individual process de novo, we have developed an innovative, structural approach to achieve community consultation in research planning, implementation, and dissemination that involves and educates the public about research. Objectives: To collaboratively develop (1) an independent research review board of volunteer community residents and repre sentatives that tests a model of community consultation, dialogue, and “community-informed consent” by reviewing community-based research proposals; and (2) to increased understanding of and participation in clinical research in the Bronx. Methods: (1) Recruiting members from the Health and Human Services committees of community boards, focus groups, and community health events; (2) interviewing and selecting members based on community involvement, experiences, availability, and demographics of the Bronx; (3) training members in bioethics and research methods; and (4) facilitating meetings and discussions between clinical researchers and the BxCRRB for research review and consultation. Results: There is substantial interest among Bronx residents in participating in the BxCRRB. The BxCRRB provided feedback to researchers to ensure the protection of participants’ rights, to improve research design by promoting increased accountability to the community, and expanded its scope to include earlier stages of the research process. Conclusion: The BxCRRB is a viable model for community consultation in research, but more time for implementation and evolution is needed to improve its review practices and ensure community input at all stages of the research process. |
| Databáze: | OpenAIRE |
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