End-of-life decisions for people with intellectual disability – a Swiss survey
| Autor: | Monika T. Wicki, Achim Hättich |
|---|---|
| Rok vydání: | 2016 |
| Předmět: |
Gerontology
030506 rehabilitation Incidence (epidemiology) medicine.disease Logistic regression Test (assessment) Medical services 03 medical and health sciences Psychiatry and Mental health 0302 clinical medicine Residential care Intellectual disability Developmental and Educational Psychology medicine 030212 general & internal medicine 0305 other medical science Psychology |
| Zdroj: | International Journal of Developmental Disability |
| ISSN: | 2047-3877 2047-3869 |
| DOI: | 10.1080/20473869.2015.1107363 |
| Popis: | Objectives The aim of this study was to explore the prevalence and nature of end of life decisions for people with disabilities in Swiss residential homes and determine their involvement making these decisions. Methods All of the residential homes for adults with disabilities in Switzerland (N = 437) were invited to participate in a cross sectional survey. The survey response quote was 58.2. Residential home directors provided information on 233 deaths. The Chi square test was used to study differences in the prevalence and nature of end of life decisions between people with intellectual disability (ID) and people with other disabilities. The Mann Whitney test was used to analyse differences in their involvement in end of life decisions. Binary logistic regression analyses were used to analyse factors determining the prevalence of withholding life prolonging treatment from these residents. Results A high prevalence of end of life decisions was found (70.4). For people with ID the decision to abandon life prolonging treatment was more often taken (46.2 72 out of 156 residents) than for people with other disabilities (24.7 19 out of 77 residents) (?2(1 N = 233) = 9.992 P=0.01). The following variables were positively associated with the decision to withhold life prolonging treatment: presence of advanced directives (odds ratio [OR] 2.998; 95 CI 1.629 5.518) degree of disability (odds ratio [OR] 1.677; 95 CI 1.247 2.256) and intellectual disability (odds ratio [OR] 2.265; 95 CI 1.064 4.823). Conclusion This study provides the first insight into end of life decision making for people with ID in Switzerland. The results have implications on surrogate decision making for people with ID living in residential homes. |
| Databáze: | OpenAIRE |
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