Aging with Hemophilia: Implications for Social Work Practice

Autor: Ellen Kachalsky, Karen Neuman Allen
Rok vydání: 2010
Předmět:
Zdroj: Social Work in Health Care. 49:327-344
ISSN: 1541-034X
0098-1389
DOI: 10.1080/00981380903520434
Popis: Individuals with hemophilia and other congenital bleeding disorders are surviving beyond any life expectancy previously predicted and now face conditions associated with "normal" aging. Hemophilia along with co-morbid conditions of HIV and Hepatitis C complicate treatment for heart disease, cancer, kidney disease, and other age-related diseases. Lack of understanding of the condition, its treatment, and its costs hampers care, particularly when patients are treated outside of specialty clinics. This article provides an overview of bleeding disorders with a special focus on aging considerations. The role of social work in specialized hemophilia treatment centers is described and suggestions made to other social workers who may encounter this population in their practice. Finally, the need for policy and advocacy strategies is also addressed.
Databáze: OpenAIRE