The cerebral palsy research network: Building a learning health network for cerebral palsy
| Autor: | Unni G. Narayanan, Paul Gross, Mary E. Gannotti, Jacob Kean, Ed Hurvitz, Amy F Bailes, Jeffrey R. Leonard, Michele Shusterman, Garey Noritz |
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| Rok vydání: | 2021 |
| Předmět: |
Strategic planning
Process management Data collection Quality management Computer science business.industry Corporate governance Cerebral Palsy Rehabilitation Physical Therapy Sports Therapy and Rehabilitation medicine.disease Clinical decision support system Cerebral palsy 03 medical and health sciences Leadership 0302 clinical medicine Analytics Data quality Pediatrics Perinatology and Child Health medicine Humans Learning 030212 general & internal medicine business 030217 neurology & neurosurgery |
| Zdroj: | Journal of pediatric rehabilitation medicine. 14(2) |
| ISSN: | 1875-8894 |
| Popis: | PURPOSE: The purpose of this study was to measure the growth of the Cerebral Palsy (CP) Research Network towards becoming a Learning Health Network in order to guide future development. METHODS: Thirteen CP Research Network leaders completed the Network Maturity Grid (NMG) which consists of six domains with eight to 10 components each. The six domains are Systems of Leadership, Governance and Management, Quality Improvement, Engagement and Community, Data and Analytics, and Research. Radar mapping was utilized to display mean scores on a 5-point ordinal scale (1 = not started to 5 = idealized state) across domains and for individual components within domains. Consensus was reached for top priorities for the next 3–5 years. RESULTS: Domain scores ranged from 2.4 in Quality Improvement to 3.2 in System of Leadership. The lowest scoring component was clinician clinical decision support and the highest was common purpose. The following priority areas of focus were agreed upon moving forward: development of leaders, financial sustainability, quality improvement education and training, patient reported data, data quality and validation, and primary data collection. CONCLUSION: Results from this project will be utilized for strategic planning to improve the network. Conducting regular self-assessments of the network with the NMG will be useful in achieving the network’s ultimate goal to improve care and outcomes for individuals with CP. |
| Databáze: | OpenAIRE |
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