'It’s More Difficult…': Clinicians’ Experience Providing Palliative Care to Adolescents and Young Adults Diagnosed With Advanced Cancer
| Autor: | Amirrtha Srikanthan, Seline Tam, Arielle Geist, Abha A. Gupta, Alisha Kassam, Paolo Mazzotta, Jonathan Avery, Norma Mammone D'Agostino, Sarah K Kawaguchi, Mahsa Samadi, Ramona Mahtani, Camilla Zimmermann, Pamela J Mosher, Ahmed Al-Awamer |
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| Rok vydání: | 2020 |
| Předmět: |
Adult
Male medicine.medical_specialty Palliative care Health Personnel Population MEDLINE Young Adult 03 medical and health sciences 0302 clinical medicine Quality of life (healthcare) Neoplasms medicine Humans 030212 general & internal medicine Young adult education Aged education.field_of_study Oncology (nursing) business.industry Health Policy Palliative Care Middle Aged Advanced cancer Oncology 030220 oncology & carcinogenesis Family medicine Quality of Life Female business |
| Zdroj: | JCO Oncology Practice. 16:e100-e108 |
| ISSN: | 2688-1535 2688-1527 |
| Popis: | PURPOSE: Adolescents and young adults (AYAs; age 15-39 years) with advanced cancer are a population in whom quality of life is uniquely affected because of their stage of life. However, training focused on palliative care for AYAs is not routinely provided for health care providers (HCPs) in oncology. This study aims to explore the experiences of HCPs involved in introducing and providing palliative care caring for AYAs with advanced cancer and their families to understand the unique challenges HCPs experience. METHODS: Using a qualitative descriptive design, semistructured interviews were conducted with medical and radiation oncologists, palliative care physicians, psychiatrists, and advanced practice nurses involved in caring for AYAs diagnosed with advanced cancer (N = 19). Interviews were transcribed verbatim and analyzed using thematic analysis in combination with constant comparative analysis and theoretical sampling. RESULTS: There were 19 participants, 9 men and 10 women, with a median age of 45 years (range, 24-67 years). Six were palliative care physicians, 5 medical oncologists, 4 nurse practitioners, and 2 each radiation oncologists and psychiatrists. Overall, participants perceived the provision of palliative care for AYAs to be more difficult compared with older adults. Four themes emerged: (1) challenges helping AYAs/families to engage in and accept palliative care, (2) uncertainty regarding how to involve the family, (3) HCP sense of tragedy, and (4) HCP sense of emotional proximity. CONCLUSION: Findings from this study support the development of dedicated training for HCPs involved in palliative care for AYA. |
| Databáze: | OpenAIRE |
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