Cleft lip and palate:Care configuration, national registration, and research strategies
| Autor: | Jonathan R Sandy, Kerry Humphries, Tony Ireland, Amy Davies, Yvonne Wren |
|---|---|
| Jazyk: | angličtina |
| Rok vydání: | 2020 |
| Předmět: |
media_common.quotation_subject
Cleft Lip Global problem Orthodontics Context (language use) Outcomes Education 030207 dermatology & venereal diseases 03 medical and health sciences 0302 clinical medicine Nursing Cleft lip and palate Relevance (law) Humans Quality (business) Child media_common Cancer Service (business) Centralization 030206 dentistry Hospital care Educational attainment Cleft Palate Europe Special Review Article Research strategies Research Design Business |
| Zdroj: | Sandy, J, Davies, A, Humphries, K, Ireland, T & Wren, Y 2020, ' Cleft lip and palate : Care configuration, national registration, and research strategies ', Journal of the World federation of orthodontists, vol. 9, no. 3S, pp. S40-S44 . https://doi.org/10.1016/j.ejwf.2020.09.003 Journal of the World Federation of Orthodontists |
| Popis: | A child born with a cleft lip and palate will face 20 years or more of hospital care and surgery. This is a global problem with approximately 10 million people affected worldwide. Various models of care exist around the condition, and the best configurations of services within an economy need to be optimized. We provide examples of how centralized care can improve outcomes and provide an opportunity to establish national registries, and then emphasize the opportunities for building research platforms of relevance. The default of any cleft service should be to centralize care and enable cleft teams with a sufficient volume of patients to develop proficiency and measure the quality of outcomes. The latter needs to be benchmarked against the better centers in Europe. Two areas of concern for those with cleft are morbidity/mortality and educational attainment. These two issues are placed in context within the literature and wider approaches using population genetics. Orthodontists have always played a key role in developing these initiatives and are core members of cleft teams with major responsibilities for these children and their families. Highlights • Cleft lip and palate affects about 10 million people worldwide. • Centralised care can improve outcome and establish national registries. • Orthodontists have played a key role in developing these initiatives. • No strong evidence of an association between clefting and cancer. • Proper care can positively influence lives of children born with a cleft. |
| Databáze: | OpenAIRE |
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