Parental empowerment in paediatric rehabilitation: Exploring the role of a digital tool to help parents prepare for consultation with a physician

Autor: Johanna M A Visser-Meily, M. Verhoef, Marian J. Jongmans, Karen van Meeteren, Marjolijn Ketelaar, Jessica Braakman, M. W. Alsem, R. C. Siebes
Přispěvatelé: Sub Orthopedagogiek CL, Faculteit Sociale Wetenschappen, Leerstoel Jongmans, Education and Learning: Cognitive and Motor Disabilities, Amsterdam Reproduction & Development (AR&D), Rehabilitation medicine
Jazyk: angličtina
Rok vydání: 2019
Předmět:
Male
Parents
information
Cohort Studies
0302 clinical medicine
family
centred care
Professional-Family Relations
Surveys and Questionnaires
Developmental and Educational Psychology
Child
Empowerment
Health Education
GeneralLiterature_REFERENCE(e.g.
dictionaries
encyclopedias
glossaries)
Research Articles
ComputingMilieux_MISCELLANEOUS
Netherlands
media_common
05 social sciences
Disabled Children
Self Efficacy
Rehabilitation physician
Patient Satisfaction
Child
Preschool
Female
family empowerment
The Internet
Psychology
Attitude to Health
Internet-Based Intervention
Research Article
050104 developmental & child psychology
Cohort study
paediatric rehabilitation
Adolescent
Attitude of Health Personnel
media_common.quotation_subject
Paediatric rehabilitation
Young Adult
03 medical and health sciences
Nursing
030225 pediatrics
consultation
Humans
0501 psychology and cognitive sciences
family centred care
business.industry
Infant
Newborn
Public Health
Environmental and Occupational Health
Infant
Pediatrics
Perinatology and Child Health
Physician satisfaction
business
Zdroj: Child: care, health and development, 45(5), 623-636. Wiley-Blackwell
Child
ISSN: 0305-1862
DOI: 10.1111/cch.12700
Popis: Background To explore experiences of parents of children with disabilities using the WWW, roadmap, a tool to support them in exploring needs, finding information, and asking questions of professionals and to explore differences between parents who had used the WWW‐roadmap to prepare for consultation with their rehabilitation physician and parents who had not. Methods In a sequential cohort study, we included 128 parents; 54 used the WWW‐roadmap prior to consultation and 74 received care‐as‐usual. Both groups completed questionnaires after consultation, assessing empowerment, self‐efficacy, parent and physician satisfaction, family centredness of care, and experiences using the tool. Additionally, 13 parents were interviewed. Results Parents who used the WWW‐roadmap looked up more information on the Internet. No other differences between parents and physicians were found. In the interviews, parents said that the WWW‐roadmap was a useful tool for looking up information, exploring and asking questions, and maintaining a comprehensive picture. Conclusion Using the WWW‐roadmap prior to consultation did not improve self‐efficacy, satisfaction, or family centredness of care. Findings suggest positive experiences regarding factors determining empowerment, creating conditions for a more equal parent–physician relationship. The WWW‐roadmap is useful for parents to explore their needs and find information, but more is needed to support empowerment in consultations.
Databáze: OpenAIRE
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