Communication and shared decision-making with patients with limited health literacy; helpful strategies, barriers and suggestions for improvement reported by hospital-based palliative care providers

Autor: Ruud T. J. Roodbeen, Astrid Vreke, Maria van den Muijsenbergh, Sandra van Dulmen, Jany Rademakers, Gudule Boland, Janneke Noordman
Přispěvatelé: Family Medicine, RS: CAPHRI - R6 - Promoting Health & Personalised Care, Verslaving, Tranzo, Scientific center for care and wellbeing
Jazyk: angličtina
Rok vydání: 2020
Předmět:
Male
Health Knowledge
Attitudes
Practice
Quality management
Palliative care
INFORMATION
IMPACT
Health Care Providers
Cancer Treatment
Nurses
Social Sciences
Literacy
FAMILIES
0302 clinical medicine
Sociology
Health care
Medicine and Health Sciences
030212 general & internal medicine
Medical Personnel
media_common
Multidisciplinary
030503 health policy & services
Palliative Care
Social Communication
Quality Improvement
CANCER
Professions
Health Education and Awareness
Oncology
Medicine
Female
Thematic analysis
0305 other medical science
Psychology
Research Article
Patients
media_common.quotation_subject
Science
education
Clinical Decision-Making
MEDLINE
Context (language use)
Healthcare improvement science Radboud Institute for Health Sciences [Radboudumc 18]
03 medical and health sciences
Nursing
Patient Education as Topic
PEOPLE
Physicians
Humans
Time management
KNOWLEDGE
Physician-Patient Relations
business.industry
RECALL
Communications
Health Literacy
Health Care
People and Places
Population Groupings
business
Nurse-Patient Relations
Zdroj: PLOS ONE, 15(6):0234926. Public Library of Science
PLoS ONE
PLoS ONE, Vol 15, Iss 6, p e0234926 (2020)
PLoS One, 15, 6
PLOS ONE
e0234926
PLOS ONE, 15(6):e0234926. PUBLIC LIBRARY SCIENCE
PLoS One, 15
ISSN: 1932-6203
Popis: Contains fulltext : 221002.pdf (Publisher’s version ) (Open Access) BACKGROUND: Communication and shared decision-making (SDM) are essential to patient-centered care. Hospital-based palliative care with patients with limited health literacy (LHL) poses particular demands on communication. In this context, patients' emotions and vulnerable condition impact their skills to obtain, understand, process and apply information about health and healthcare even more. If healthcare providers (HCPs) meet these demands, it could enhance communication. In this study, HCPs were interviewed and asked for their strategies, barriers and suggestions for improvement regarding communication and SDM with LHL patients in hospital-based palliative care. METHODS: A qualitative interview study was conducted in 2018 in four Dutch hospitals with 17 HCPs-11 physicians and 6 nurses. Transcripts were analyzed using thematic analysis. RESULTS: In general HCPs recognized limited literacy as a concept, however, they did not recognize limited health literacy. Regarding SDM some HCPs were strong advocates, others did not believe in SDM as a concept and perceived it as unfeasible. Furthermore, five themes, acting as either strategies, barriers or suggestions for improvement emerged from the interviews: 1) time management; 2) HCPs' communication skills; 3) information tailoring; 4) characteristics of patients and significant others; 5) the content of the medical information. CONCLUSIONS: According to HCPs, more time to communicate with their patients could resolve the most prominent barriers emerged from this study. Further research should investigate the organizational possibilities for this and the actual effectiveness of additional time on effective communication and SDM. Additionally, more awareness for the concept of LHL is needed as a precondition for recognizing LHL. Furthermore, future research should be directed towards opportunities for tailoring communication, and the extent to which limited knowledge and complex information affect communication and SDM. This study provides first insights into perspectives of HCPs, indicating directions for research on communication, SDM and LHL in hospital-based palliative care.
Databáze: OpenAIRE
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