Assessing participation of children with acquired brain injury and cerebral palsy

Autor: Petra P. M. Hurks, Christine Imms, Marjolijn Ketelaar, Barbara Piškur, Brooke Adair, Mette van Kruijsbergen, Caroline M. van Heugten, Christine Resch, Arend J. de Kloet
Jazyk: angličtina
Rok vydání: 2020
Předmět:
medicine.medical_specialty
YOUNG-CHILDREN
Psychometrics
MEDLINE
QUESTIONNAIRE
Reviews
ADOLESCENT SCALE
Cerebral palsy
Disability Evaluation
Developmental Neuroscience
Assessment of Preschool Children’s Participation (APCP)
children
CLINIMETRIC PROPERTIES
measurement properties
Surveys and Questionnaires
Medicine
participation
Humans
Child
Acquired brain injury
Reliability (statistics)
HEALTH-STATUS
OUTCOMES
business.industry
Cerebral Palsy
DISABILITY
Attendance
Reproducibility of Results
medicine.disease
Social engagement
Social Participation
acquired brain injury
Consensus-based Standards for the selection of health Measurement Instruments (COSMIN)
PSYCHOMETRIC PROPERTIES
DAILY-LIFE
YOUTH
Brain Injuries
Pediatrics
Perinatology and Child Health
instruments
Physical therapy
Methodological study
Neurology (clinical)
Systematic Review
business
Zdroj: Developmental Medicine and Child Neurology
Developmental Medicine and Child Neurology. John Wiley & Sons
ISSN: 0012-1622
Popis: Aim To examine which instruments used to assess participation of children with acquired brain injury (ABI) or cerebral palsy (CP) align with attendance and/or involvement constructs of participation; and to systematically review measurement properties of these instruments in children with ABI or CP, to guide instrument selection. Method Five databases were searched. Instruments that quantified ‘attendance’ and/or ‘involvement’ aspects of participation according to the family of participation‐related constructs were selected. Data on measurement properties were extracted and methodological quality of the studies assessed. Results Thirty‐seven instruments were used to assess participation in children with ABI or CP. Of those, 12 measured attendance and/or involvement. The reliability, validity, and responsiveness of eight of these instruments were examined in 14 studies with children with ABI or CP. Sufficient measurement properties were reported for most of the measures, but no instrument had been assessed on all relevant properties. Moreover, most psychometric studies have marked methodological limitations. Interpretation Instruments to assess participation of children with ABI or CP should be selected carefully, as many available measures do not align with attendance and/or involvement. Evidence for measurement properties is limited, mainly caused by low methodological study quality. Future studies should follow recommended methodological guidelines. What this paper adds Twelve instruments used to assess participation of children with acquired brain injury (ABI) or cerebral palsy (CP) aligned with attendance/involvement.Seven instruments have some psychometric evidence supporting their use with children with CP.For children with ABI, only the Child and Adolescent Scale of Participation has shown preliminary evidence of measurement properties.
What this paper adds Twelve instruments used to assess participation of children with acquired brain injury (ABI) or cerebral palsy (CP) aligned with attendance/involvement.Seven instruments have some psychometric evidence supporting their use with children with CP.For children with ABI, only the Child and Adolescent Scale of Participation has shown preliminary evidence of measurement properties.
Databáze: OpenAIRE
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