Common content between quality of life questionnaires for children with cystic fibrosis and the International Classification of Functionality, Disability and Health
| Autor: | Haryelle Náryma Confessor Ferreira, Luciana Castaneda Ribeiro, Olaf Kraus de Camargo, Isabelly Cristina Rodrigues Regalado, Danielle Cristina Gomes, Diego de Sousa Dantas, Egmar Longo, Silvana Alves Pereira |
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| Rok vydání: | 2019 |
| Předmět: |
Male
030506 rehabilitation medicine.medical_specialty Cystic Fibrosis Physical Therapy Sports Therapy and Rehabilitation Cystic fibrosis 03 medical and health sciences Disability Evaluation Cohen's kappa Quality of life (healthcare) International Classification of Functioning Disability and Health Surveys and Questionnaires medicine Humans Child business.industry Rehabilitation General Medicine medicine.disease Body function Family medicine Quality of Life Female 0305 other medical science business |
| Zdroj: | Journal of rehabilitation medicine. 51(8) |
| ISSN: | 1651-2081 |
| Popis: | Objective To identify the most common quality of life instruments for children with cystic fibrosis and link the content with the International Classification of Functioning, Disability and Health (ICF). Methods The study was conducted in 2 stages. The first stage involved a review of the literature to select quality of life questionnaires. In the second stage 2 independent reviewers identified questionnaire items and categories corresponding to the ICF, according to approved methodology. The degree of agreement was calculated using the kappa coefficient. Results Two questionnaires were selected: the Cystic Fibrosis Questionnaire and DISABKIDS®. A total of 130 concepts were identified from the 112 items. Forty-seven different ICF categories were linked (k>0.62 for all questionnaires), 21 (44.7%) were related to the "body function" domain, 20 (42.6%) to "activity and participation" and 6 (12.8%) to "environmental factors". Thirteen items (10%) could not be linked because they represent personal factors or are not covered by the ICF. Conclusion Body functions were the category most linked to the ICF. Environmental factors were poorly described, and no items were related to body structures in any of the instruments. |
| Databáze: | OpenAIRE |
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