Living with heart failure:perspectives of ethnic minority families
| Autor: | Birte Østergaard, Mahdi Shamali, Hanne Konradsen |
|---|---|
| Jazyk: | angličtina |
| Rok vydání: | 2020 |
| Předmět: |
Gerontology
Male Health Knowledge Attitudes Practice lcsh:Diseases of the circulatory (Cardiovascular) system Minority group Denmark Ethnic group heart failure Disease 030204 cardiovascular system & hematology Iran Heart Failure/diagnosis 0302 clinical medicine Cost of Illness Activities of Daily Living Adaptation Psychological Ethnicity minority group Minority Health Minority Groups Qualitative Research media_common Illness Behavior family perspective 030504 nursing Sick role Middle Aged Health Knowledge Attitudes Practice/ethnology Female Family Relations 0305 other medical science Cardiology and Cardiovascular Medicine Psychology Adult media_common.quotation_subject Interviews as Topic 03 medical and health sciences Quality of life (healthcare) Humans Heart Failure and Cardiomyopathies Aged Ethnic Groups/psychology Cultural Characteristics Minority Health/ethnology Minority Groups/psychology Independence Denmark/epidemiology Iran/ethnology Content analysis lcsh:RC666-701 qualitative Qualitative research |
| Zdroj: | Shamali, M, Østergaard, B & Konradsen, H 2020, ' Living with heart failure : perspectives of ethnic minority families ', Open Heart, vol. 7, no. 1, e001289 . https://doi.org/10.1136/openhrt-2020-001289 Open Heart, Vol 7, Iss 1 (2020) Open Heart |
| DOI: | 10.1136/openhrt-2020-001289 |
| Popis: | BackgroundThe family perspective on heart failure (HF) has an important role in patients’ self-care patterns, adjustment to the disease and quality of life. Little is known about families’ experiences of living with HF, particularly in ethnic minority families. This study describes the experiences of Iranian families living with HF as an ethnic minority family in Denmark.MethodsIn this descriptive qualitative study, we conducted eight face-to-face joint family interviews of Iranian patients with HF and their family members living in Denmark. We used content analysis with an inductive approach for data analysis.ResultsWe identified three categories: family daily life, process of independence and family relationships. Families were faced with physical restrictions, emotional distress and social limitations in their daily lives that threatened the patients’ independence. Different strategies were used to promote independence. One strategy was normalisation and avoiding the sick role; another strategy was accepting and adjusting themselves to challenges and limitations. The independence process itself had an impact on family relationships. Adjusting well to the new situation strengthened the relationship, while having problems in adjustment strained the relationship within the family.ConclusionsThis study highlights the process of independence as perceived by families living with HF. It is crucial to both families and healthcare professionals to maintain a balance between providing adequate support and ensuring independence when dealing with patients with HF. Understanding patients’ stories and their needs seems to be helpful in gaining this balance. |
| Databáze: | OpenAIRE |
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