Information preferences of the general population when faced with life-limiting illness
| Autor: | Marc Roelands, Robert Vander Stichele, Lieve Van den Block, Aline De Vleminck, Dirk Houttekier, Luc Deliens, Koen Pardon |
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| Přispěvatelé: | End-of-life Care Research Group, Public Health Care |
| Jazyk: | angličtina |
| Rok vydání: | 2015 |
| Předmět: |
Adult
Male public preferences medicine.medical_specialty Palliative care Adolescent Cross-sectional study Population Decision Making MEDLINE Young Adult Sex Factors Nursing Belgium Surveys and Questionnaires Information medicine Humans Young adult education Aged education.field_of_study Terminal Care business.industry Palliative Care Public Health Environmental and Occupational Health Age Factors Patient Preference Middle Aged Health promotion Cross-Sectional Studies Health Communication Family medicine Attitudes Life expectancy Female business Patient education |
| Popis: | Background: Giving the public and the patients good information enables them to make effective choices about their care. This study describes public preferences for both themselves and their relatives on receiving information on end-of-life care topics when faced with a life-limiting illness and to identify associated factors. Method: This study used data from the cross-sectional Health Interview Study (HIS) 2008 that collected data from a represen- tative sample (N = 9651) of the Belgian population. Results: Around 82% of respondents wanted to be informed always about diagnosis, chances of cure and available treatments, 77% wanted to be informed on life expectancy, 72% on options regarding palliative care and 67% on possibilities of prolonging or shortening life. Around 55% wanted their relative to be informed always about diagnosis, chances of cure, life expectancy and different treatments available, whereas 50% wanted this in relation to the options regarding palliative care and 46% on the possibilities of prolonging or shortening life. Younger adults, people with more education and people with a regular GP were more likely to want to be informed always. Younger adults and women were less likely to want their relatives to be informed always. Conclusion: The majority of the Belgian population wants to be informed always about end-of-life care topics when faced with a life-limiting illness. Physicians should be aware of the desired level of information and tailor information to individual patient preferences. Understanding population preferences may help to tailor patient education and health promotion programmes appropriately. |
| Databáze: | OpenAIRE |
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