Psychosocial health and quality of life among children with cardiac diagnoses: agreement and discrepancies between parent and child reports

Autor: Gary S. Goldfield, Renee Sananes, Patricia E. Longmuir, Bhavika J Patel, Lillian Lai
Rok vydání: 2016
Předmět:
Zdroj: Cardiology in the Young. 27:713-721
ISSN: 1467-1107
1047-9511
Popis: Psychosocial health issues are common among children with cardiac diagnoses. Understanding parent and child perceptions is important because parents are the primary health information source. Significant discrepancies have been documented between parent/child quality-of-life data but have not been examined among psychosocial diagnostic instruments. This study examined agreement and discrepancies between parent and child reports of psychosocial health and quality of life in the paediatric cardiology population. Children (n=50, 6–14 years) with diagnoses of CHDs (n=38), arrhythmia (n=5), cardiomyopathy (n=4), or infectious disease affecting the heart (n=3) were enrolled, completing one or more outcome measures. Children and their parents completed self-reports and parent proxy reports of quality of life – Pediatric Quality of Life Inventory – and psychosocial health – Behavioral Assessment Scale for Children (Version 2). Patients also completed the Multidimensional Anxiety Scale for Children. Associations (Pearson’s correlations, Intraclass Correlation Coefficients) and differences (Student’s t-tests) between parent proxy reports and child self-reports were evaluated. Moderate parent–child correlations were found for physical (R=0.33, p=0.03), school (R=0.43, p
Databáze: OpenAIRE