Psychological Well-Being of Parents of Very Young Children With Type 1 Diabetes – Baseline Assessment
| Autor: | Carine de Beaufort, Ineke M. Pit-ten Cate, Ulrike Schierloh, Nathan Cohen, Charlotte K. Boughton, Martin Tauschmann, Janet M. Allen, Katrin Nagl, Maria Fritsch, James Yong, Emily Metcalfe, Dominique Schaeffer, Muriel Fichelle, Alena G. Thiele, Daniela Abt, Kerstin Faninger, Julia K. Mader, Sonja Slegtenhorst, Nicole Ashcroft, Malgorzata E. Wilinska, Judy Sibayan, Craig Kollman, Sabine E. Hofer, Elke Fröhlich-Reiterer, Thomas M. Kapellen, Carlo L. Acerini, Fiona Campbell, Birgit Rami-Merhar, Roman Hovorka |
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| Přispěvatelé: | Apollo - University of Cambridge Repository, Pediatrics, Faculty of Medicine and Pharmacy, Boughton, Charlotte [0000-0003-3272-9544], Hovorka, Roman [0000-0003-2901-461X] |
| Rok vydání: | 2021 |
| Předmět: |
Male
Parents Pediatrics Child age type 1 diabetes Endocrinology Diabetes and Metabolism Anxiety very young children Endocrinology Surveys and Questionnaires Insulin Age of Onset Child media_common Original Research Epworth Sleepiness Scale Fear Europe Prosocial behavior hypoglycemia fear Child Preschool Female Worry parental well-being Anxiety/epidemiology Parents/psychology Adult medicine.medical_specialty media_common.quotation_subject Hypoglycemia Hypoglycemia/prevention & control sleepiness Diseases of the endocrine glands. Clinical endocrinology Europe/epidemiology Child Behavior/psychology Insulin Infusion Systems Negatively associated medicine Humans ddc:610 Type 1 diabetes business.industry Infant Diabetes Mellitus Type 1/blood child behavior RC648-665 medicine.disease Diabetes Mellitus Type 1 Fear/psychology Psychological well-being hypoglycemia fear parental well-being very young children type 1 diabetes child behavior sleepiness business Insulin/administration & dosage |
| Zdroj: | Frontiers in Endocrinology Frontiers in Endocrinology, Vol 12 (2021) |
| Popis: | BackgroundType 1 diabetes in young children is a heavy parental burden. As part of pilot phase of the KIDSAP01 study, we conducted a baseline assessment in parents to study the association between hypoglycemia fear, parental well-being and child behavior.MethodsAll parents were invited to fill in baseline questionnaires: hypoglycemia fear survey (HFS), WHO-5, Epworth Sleepiness Scale and Strength and Difficulties Questionnaire (SDQ).Results24 children (median age: 5-year, range 1-7 years, 63% male, mean diabetes duration: 3 ± 1.7 years) participated. 23/24 parents filled out the questionnaires. We found a higher score for the hypoglycemia fear behavior 33.9 ± 5.6 compared to hypoglycemia worry 34.6 ± 12.2. Median WHO-5 score was 16 (8 - 22) with poor well-being in two parents. Median daytime sleepiness score was high in five parents (>10). For six children a high total behavioral difficulty score (>16) was reported. Pro social behavior score was lower than normal in six children (r = - 0.50, p r = - 0.44, p r = - 0.45, p = .05) and positively with child age and diabetes duration (r = 0.58, p r = 0.6, p ConclusionRegular screening of parental well-being, hypoglycemia fear and child behavior should be part of routine care to target early intervention. |
| Databáze: | OpenAIRE |
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