Survivorship after childhood cancer: PanCare: A European Network to promote optimal long-term care
| Autor: | Jörn D. Beck, Stefan Essig, Leontinen Kremer, S Karner, Elaine Sugden, Herwig Lackner, Monica Terenziani, Momcilo Jankovic, Bernarda Kazanowska, Stanislav Garwicz, Florent de Vathaire, Roderick Skinner, Gisela Michel, Tomáš Kepák, Lars Hjorth, Zsuzsanna Jakab, Julianne Byrne, Helena J H van der Pal, Michael M. Hawkins, Lorna Zadravec Zaletel, Eva Frey, Peter Kaatsch, Edit Bardi, Gill Levitt, Desiree Grabow, Riccardo Haupt |
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| Přispěvatelé: | CCA -Cancer Center Amsterdam, APH - Amsterdam Public Health, Paediatric Oncology, ARD - Amsterdam Reproduction and Development |
| Jazyk: | angličtina |
| Rok vydání: | 2015 |
| Předmět: |
Gerontology
Male Cancer Research Adolescent Childhood cancer Population Article Multimodality Quality of life (healthcare) Survivorship curve Neoplasms medicine Humans Survivors education Child education.field_of_study business.industry Late effect Cancer medicine.disease Long-Term Care Europe Long-term care Treatment Outcome Oncology Child Preschool Quality of Life Female medicine.symptom business |
| Zdroj: | European journal of cancer (Oxford, England, 51(10), 1203-1211. Elsevier Limited |
| ISSN: | 0959-8049 |
| Popis: | Survival after childhood cancer has improved substantially over recent decades. Although cancer in childhood is rare increasingly effective treatments have led to a growing number of long-term survivors. It is estimated that there are between 300,000 and 500,000 childhood cancer survivors in Europe. Such good survival prospects raise important questions relating to late effects of treatment for cancer. Research has shown that the majority will suffer adverse health outcomes and premature mortality compared with the general population. While chronic health conditions are common among childhood cancer survivors, each specific type of late effect is very rare. Long-term effects must be considered particularly when addressing complex multimodality treatments, and taking into account the interaction between aspects of treatment and genotype. The PanCare Network was set up across Europe in order to effectively answer many of these questions and thereby improve the care and quality of life of survivors. The need for a structured long-term follow-up system after childhood cancer has been recognised for some time and strategies for implementation have been developed, first nationally and then trans-nationally, across Europe. Since its first meeting in Lund in 2008, the goal of the PanCare Network has been to coordinate and implement these strategies to ensure that every European survivor of childhood and adolescent cancer receives optimal long-term care. This paper will outline the structure and work of the PanCare Network, including the results of several European surveys, the start of two EU-funded projects and interactions with relevant stakeholders and related projects. |
| Databáze: | OpenAIRE |
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