Presentation of a nationwide multicenter registry of intestinal failure and intestinal transplantation

Autor: Gerard M. Damen, Geert J. A. Wanten, Merit M. Tabbers, Gerard Dijkstra, Esther Neelis, J.H. Kloeze, Vincent B. Nieuwenhuijs, Mireille J. Serlie, C. Jonkers, E.D. Olthof, Anne Margot C. Roskott, Edmond H. H. M. Rings, Rutger J. Ploeg, Floris Imhann
Přispěvatelé: AGEM - Amsterdam Gastroenterology Endocrinology Metabolism, Endocrinology, Paediatric Gastroenterology, Extramural researchers, Pediatrics, Groningen Institute for Gastro Intestinal Genetics and Immunology (3GI), Translational Immunology Groningen (TRIGR), Groningen Institute for Organ Transplantation (GIOT)
Rok vydání: 2016
Předmět:
0301 basic medicine
Adult
Male
Pediatrics
medicine.medical_specialty
medicine.medical_treatment
lnfectious Diseases and Global Health Radboud Institute for Molecular Life Sciences [Radboudumc 4]
Prevalence
Critical Care and Intensive Care Medicine
03 medical and health sciences
0302 clinical medicine
Postoperative Complications
Intestinal failure
medicine
Humans
SHORT-BOWEL SYNDROME
Registries
HOME
Child
Netherlands
Internet
Home parenteral nutrition
030109 nutrition & dietetics
Nutrition and Dietetics
business.industry
PARENTERAL-NUTRITION
Nutritional Requirements
ADULTS
Organ Transplantation
Short bowel syndrome
medicine.disease
Intestinal transplantation
Chronic intestinal failure
Transplantation
Intestines
Intestinal Diseases
Parenteral nutrition
Cross-Sectional Studies
Chronic Disease
030211 gastroenterology & hepatology
Transplant patient
Female
business
Parenteral Nutrition
Home
Inflammatory diseases Radboud Institute for Molecular Life Sciences [Radboudumc 5]
Central venous catheter
Zdroj: Clinical Nutrition, 35, 225-9
Clinical nutrition (Edinburgh, Scotland), 35(1), 225-229. Churchill Livingstone
Clinical Nutrition, 35(1), 225-229. Churchill Livingstone
Clinical Nutrition, 35(1), 225-229
Clinical Nutrition, 35, 1, pp. 225-9
ISSN: 0261-5614
Popis: Background & aims: Exact data on Dutch patients with chronic intestinal failure (CIF) and after intestinal transplantation (ITx) have been lacking. To improve standard care of these patients, a nationwide collaboration has been established. Objectives of this study were obtaining an up-to-date prevalence of CIF and characterizing these patients using the specially developed multicenter web-based Dutch Registry of Intestinal Failure and Intestinal Transplantation (DRIFT).Methods: Cross-sectional study. CIF was defined as type 3 intestinal failure in which >75% of nutritional requirements were given as home parenteral nutrition (HPN) for >= 4 weeks in children and >50% for >= 3 months in adults. All patients with CIF receiving HPN care by the three Dutch specialized centers on January 1, 2013 and all ITx patients were registered in DRIFT (https://drift.darmfalen.nl).Results: In total, 195 patients with CIF (158 adults, 37 children) were identified, of whom 184 were registered in DRIFT. The Dutch point prevalence of CIF was 11.62 per million (12.24 for adults, 9.56 for children) on January 1, 2013. Fifty-seven patients (31%) had one or more indications for ITx, while 12 patients actually underwent ITx since its Dutch introduction. Four patients required transplantectomy of their intestinal graft and 3 intestinal transplant patients died.Conclusion: The multicenter registry DRIFT revealed an up-to-date prevalence of CIF and provided nationwide insight into the patients with CIF during HPN and after ITx in the Netherlands. DRIFT will facilitate the multicenter monitoring of individual patients, thereby supporting multidisciplinary care and decision-making. (C) 2015 Elsevier Ltd and European Society for Clinical Nutrition and Metabolism. All rights reserved.
Databáze: OpenAIRE
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