Crohn’s Colitis Care (CCCare): bespoke cloud-based clinical management software for inflammatory bowel disease
| Autor: | Graham L. Radford-Smith, David William Carter, Anna McMahon, Australia, Sally Bell, Jane M. Andrews, Alissa Walsh, Rachel Grafton, Krupa Krishnaprasad, Jakob Begun, Susan J. Connor, Alexandra Sechi, Karen Sewell, Crohn’s Colitis Cure |
|---|---|
| Rok vydání: | 2020 |
| Předmět: |
Telemedicine
medicine.medical_specialty Crohn's colitis Cloud computing Inflammatory bowel disease 03 medical and health sciences 0302 clinical medicine eHealth Humans Medicine Intensive care medicine Electronic systems Bespoke business.industry Australia Gastroenterology Cloud Computing Colitis Inflammatory Bowel Diseases medicine.disease digestive system diseases Healthcare utilization 030220 oncology & carcinogenesis 030211 gastroenterology & hepatology business Software |
| Zdroj: | Scandinavian Journal of Gastroenterology. 55:1419-1426 |
| ISSN: | 1502-7708 0036-5521 |
| Popis: | Adherence to evidence-based management is variable in inflammatory bowel disease (IBD), which leads to worse patient outcomes and higher healthcare utilization. Solutions include electronic systems to enhance care, but these have often been limited by lack of clinician design input, poor usability, and low perceived value. A cloud-based IBD-specific clinical management software - 'Crohn's Colitis Care' (CCCare) was developed by Australia and New Zealand Inflammatory Bowel Disease Consortium clinicians and software developers to improve this.CCCare captures patient-reported disease activity and medical assessment, medication monitoring, cancer screening, preventative health, and facilitates communication with the IBD team and referring doctor. De-identified longitudinal data are stored separately in a clinical quality registry for research. CCCare was tested for feasibility and usability in routine clinical settings at two large Australian hospitals. Users' experience was evaluated with System Usability Scale (SUS). Value to clinicians and patients was assessed by qualitative feedback. Security was assessed by penetration testing.Users (Initial evaluation demonstrates CCCare is usable, secure, and valued in clinical use. It is designed to measure outcomes of clinical care, including efficacy, quality, cost, and complications for individuals, and to audit these at hospital and national level. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
|