Tailored Messages About Research Participation: Using an Interactive Information Aid to Improve Study Recruitment

Autor: Wei Peng, Bingjing Mao, Soroya Julian McFarlane, Susan E. Morgan, Barbara Millet, Aurora Occa, Margaret M. Byrne, Gilles Grinfeder
Rok vydání: 2020
Předmět:
Zdroj: Journal of Cancer Education. 37:16-22
ISSN: 1543-0154
0885-8195
Popis: After a diagnosis of cancer (or other serious disease), patients may be asked to consider joining a clinical trial. Because most people are unfamiliar with the scientific concepts that are necessary to the provision of meaningful informed consent, patient education is necessary. Increasing knowledge alone is not sufficient; understanding how clinical trial participation aligns with personal circumstances and knowledge is central to the decision-making process. In this study, 302 cancer patients and survivors evaluated an interactive information aid (IA) designed to inform their decision to join a research study or clinical trial by providing tailored information to patients' responses to questions pertaining to seven key barriers or facilitators of clinical trial participation. The development of the IA was done with input from the authors' Clinical Translational Science Institute; linked components of the IA were vetted by members and leaders of the institution's NCI-designated comprehensive cancer center. Results of the study indicated that the information aid was successful in significantly reducing fears and increasing knowledge, attitudes, perceived behavioral control, and behavioral intentions about research participation relative to a control condition. Thus, an interactive information aid that provides information that is responsive to patients' values, knowledge, and personal circumstances can help patients to be better prepared to consider a decision about research participation.
Databáze: OpenAIRE
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