A qualitative study of barriers to genetic counseling and potential for mobile technology education among women with ovarian cancer

Autor:	Rachel Isaksson Vogel, Sue V. Petzel, Melissa A. Geller, Hee Yun Lee, Heewon Lee, Kristin B. Niendorf
Jazyk:	angličtina
Rok vydání:	2018
Předmět:	0301 basic medicine medicine.medical_specialty lcsh:QH426-470 Genetic counseling 030105 genetics & heredity lcsh:RC254-282 03 medical and health sciences 0302 clinical medicine Ovarian cancer Familial Cancer Cancer screening Mobile technology medicine Mobile health mHealth Genetics (clinical) business.industry Research Hereditary Cancer lcsh:Neoplasms. Tumors. Oncology. Including cancer and carcinogens Focus group Human genetics lcsh:Genetics Knowledge Oncology Mobile phone 030220 oncology & carcinogenesis Family medicine business Barriers Qualitative research
Zdroj:	Hereditary Cancer in Clinical Practice, Vol 16, Iss 1, Pp 1-7 (2018) Hereditary Cancer in Clinical Practice
ISSN:	1897-4287
DOI:	10.1186/s13053-018-0095-z
Popis:	Background National guidelines recommend genetic counseling for all ovarian cancer patients because up to 20% of ovarian cancers are thought to be due to hereditary cancer syndromes and effective cancer screening and prevention options exist for at-risk family members. Despite these recommendations, uptake of genetic counselling and testing is low. The goal of this study was to identify barriers to and motivators for receipt of genetic counseling along with preferences regarding potential use of a mobile application to promote genetic counseling. Methods Three focus groups were conducted including 14 women with a diagnosis of epithelial ovarian, primary peritoneal or fallopian tube cancer. Topics included understanding of genetic counseling, perceived pros and cons, preferences for receiving health information, and familiarity with mobile phone technology. Transcripts were analyzed using standard procedures of qualitative thematic text analysis and descriptive coding techniques. Results Six major themes regarding barriers to and motivators of genetic counseling and use of mobile technology in promoting genetic counseling emerged: (1) need for information, (2) relevance, (3) emotional concerns, (4) family concerns, (5) practical concerns, and (6) mobile application considerations. Conclusions These data reiterate previously reported barriers to genetic counseling as observed in other populations. Participants were supportive of the use of mobile technology for promoting uptake of genetic counseling.
Databáze:	OpenAIRE
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