Palliative care nursing for patients with neurological diseases: what makes the difference?
| Autor: | Anna Maria Dieplinger, Stefan Lorenzl, Firuzan Sari Kundt |
|---|---|
| Rok vydání: | 2017 |
| Předmět: |
medicine.medical_specialty
Physical disability Palliative care Disease Trust Nurse's Role 03 medical and health sciences 0302 clinical medicine Nursing 030502 gerontology Multidisciplinary approach Professional-Family Relations Medicine Humans Intensive care medicine General Nursing Daily routine business.industry Disease progression Palliative Care Nursing Neurodegenerative Diseases Caregiver burden Caregivers Hospice and Palliative Care Nursing 0305 other medical science business Nurse-Patient Relations 030217 neurology & neurosurgery |
| Zdroj: | British journal of nursing (Mark Allen Publishing). 26(6) |
| ISSN: | 0966-0461 |
| Popis: | Neurodegenerative diseases progress slowly, creating increasing physical disability with unpredictable disease trajectories. The disease's life-threatening nature often places these patients in palliative care. There are several factors that complicate the care of patients with neurodegenerative diseases in palliative care units. Owing to physical impairments, there are many communication barriers between patients and staff. Nurses are not able to duplicate the patient's meticulous daily routine leading to caregiver mistrust in the nurse's competencies. Even if the patient is hospitalised, caregivers may not take the much-needed time off to recuperate. The placement of patients with neurodegenerative diseases in palliative care is confusing, since they rarely die during in-hospital treatment but might even get better due to multidisciplinary treatment. Finally, patients and caregivers lack adequate knowledge about disease progression and available help and support programmes. Patients with neurodegenerative diseases urgently need palliative care and nurses and caregivers need better preparation to appropriately deal with these diseases. |
| Databáze: | OpenAIRE |
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