Knee–ankle–foot orthosis in children with duchenne muscular dystrophy: User views and adjustment
| Autor: | Francesco Muntoni, Anna Cunniff, M. Elena Garralda, Angeles Diaz Caneja |
|---|---|
| Rok vydání: | 2006 |
| Předmět: |
Male
Parents Risk Orthotic Devices medicine.medical_specialty Adolescent Duchenne muscular dystrophy media_common.quotation_subject medicine.medical_treatment Mental distress Patient satisfaction Physical medicine and rehabilitation Surveys and Questionnaires Adaptation Psychological Interview Psychological medicine Humans Knee Muscular dystrophy Child media_common Rehabilitation Foot business.industry Mental Disorders General Medicine medicine.disease Orthotic device Muscular Dystrophy Duchenne medicine.anatomical_structure Caregivers Feeling Patient Satisfaction Data Interpretation Statistical Pediatrics Perinatology and Child Health Physical therapy Female Neurology (clinical) Ankle business |
| Zdroj: | European Journal of Paediatric Neurology. 10:186-191 |
| ISSN: | 1090-3798 |
| Popis: | Background The use of knee ankle foot orthoses (KAFOs) to prolong independent mobility is a widely used rehabilitation strategy for children with Duchenne muscular dystrophy (DMD). Aims To explore views and adjustment of families with a child with Duchenne muscular dystrophy to the use of KAFOs. Methods interviews with families of children aged 8–18 years with DMD; questionnaires on psychiatric adjustment (SDQ for children; GHQ for parents). Results In total, 17 parents and 9 children took part. Families experienced the introduction of KAFOs as a signal for illness deterioration and a re-awakening of the feelings experienced at diagnosis. Nevertheless, the majority expressed a positive attitude and over two-thirds satisfaction with KAFOs use. High psychiatric risk was found in 2/17 children (12%; expected 10%) and 7/17 main carers (41%; expected 20–30%). Conclusion Most families were satisfied with KAFOs use, and its implementation was well tolerated especially by the children. However, mental distress was high in main carers who emphasized the importance of full preparation and support in this rehabilitation technique. |
| Databáze: | OpenAIRE |
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