Systematic Symptom Reporting by Pediatric Palliative Care Patients with Cancer: A Preliminary Report
| Autor: | Diane Liu, Eduardo Bruera, Janet L. Williams, Seyedeh Dibaj, Maira Charone, Sarah Mills, Kevin Madden |
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| Rok vydání: | 2019 |
| Předmět: |
Male
medicine.medical_specialty Attitude to Death Standard of care Adolescent Patients Symptom reporting Symptom assessment Intensive Care Units Pediatric 03 medical and health sciences 0302 clinical medicine 030502 gerontology Preliminary report Neoplasms Surveys and Questionnaires medicine Humans Patient Reported Outcome Measures Child Intensive care medicine General Nursing business.industry Palliative Care Cancer Original Articles General Medicine medicine.disease United States Pediatric palliative care Anesthesiology and Pain Medicine Caregivers 030220 oncology & carcinogenesis Hospice and Palliative Care Nursing Female Symptom Assessment 0305 other medical science business |
| Zdroj: | J Palliat Med |
| ISSN: | 1557-7740 1096-6218 |
| DOI: | 10.1089/jpm.2018.0545 |
| Popis: | Background: Systematic symptom assessment is not a standard of care in children with cancer. Many well-known symptom assessment tools are lengthy or difficult to integrate into a daily pediatric palliative care practice. We created a series of brief and simple questions to be systematically given to children and their caregivers. Objective: The primary objective was to determine the percentage of eligible children and caregivers exposed to the questions that were able to complete the assessment. Secondary objectives included documenting the symptom burden at the time of consultation, evaluating the level of agreement in symptom reporting between children and caregivers, as well as between children/caregivers and the referring medical team. Design: A series of systematic questions were presented to all caregivers (if present) and children who were seven years of age or older at the time of initial consultation with pediatric palliative care. Results: One hundred twenty-two consecutive children/caregiver dyads were given the survey. One hundred seven of 108 (99%) eligible caregivers and 83 of 97 (86%) eligible children completed the survey. Lack of appetite (child—72/83, 87%; caregiver—89/107, 83%) and pain (child—71/83, 86%; caregiver—86/107, 80%) were the most commonly reported symptoms. Caregivers reported irritability (p = 0.005) and nervousness (p |
| Databáze: | OpenAIRE |
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