Decisional role preferences, risk knowledge and information interests in patients with multiple sclerosis
Autor: | Jürgen Kasper, Christoph Heesen, Sascha Köpke, Julia Segal, Ingrid Mühlhauser |
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Rok vydání: | 2004 |
Předmět: |
Adult
Male Risk medicine.medical_specialty Multiple Sclerosis media_common.quotation_subject Decision Making MEDLINE 03 medical and health sciences 0302 clinical medicine Patient Education as Topic Perception Surveys and Questionnaires Medicine Outpatient clinic Humans 030212 general & internal medicine Patient participation media_common Data collection business.industry 030503 health policy & services Multiple sclerosis Data Collection Risk factor (computing) Middle Aged medicine.disease Focus group Neurology Family medicine Female Neurology (clinical) Patient Participation 0305 other medical science business Social psychology Attitude to Health |
Zdroj: | Multiple sclerosis (Houndmills, Basingstoke, England). 10(6) |
ISSN: | 1352-4585 |
Popis: | Objective: Shared decision making is increasingly recognized as the ideal model of patient-physician communication especially in chronic diseases with partially effective treatments as multiple sclerosis (MS). To evaluate prerequisite factors for this kind of decision making we studied patients’ decisional role preferences in medical decision making, knowledge on risks, information interests and the relations between these factors in MS. Methods: After conducting focus groups to generate hypotheses, 219 randomly selected patients from the MS Outpatient Clinic register (n=1374) of the University Hospital Hamburg received mailed questionnaires on their knowledge of risks in MS, their perception of their own level of knowledge, information interests and role preferences. Results: Most patients (79%) indicated that they preferred an active role in treatment decisions giving the shared decision and the informed choice model the highest priority. MS risk knowledge was low but questionnaire results depended on disease course, disease duration and ongoing immune therapy. Measured knowledge as well as perceived knowledge was only weakly correlated with preferences of active roles. Major information interests were related to symptom alleviation, diagnostic procedures and prognosis. Conclusion: Patients with MS claimed autonomous roles in their health care decisions. The weak correlation between knowledge and preferences for active roles implicates that other factors largely influence role preferences. |
Databáze: | OpenAIRE |
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