Psychometrics of the Sickle Cell Disease Health-Related Stigma Scale-Short Form
| Autor: | Coretta Jenerette, Julia O’Brien, Cheedy Jaja, Evanilda Souza de Santana Carvalho, Cheryl Brewer, Ronald L. Hickman |
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| Rok vydání: | 2022 |
| Předmět: | |
| Zdroj: | West J Nurs Res |
| ISSN: | 1552-8456 0193-9459 |
| Popis: | Health-related stigma, a form of devaluation related to a health condition, is common in individuals with sickle cell disease (SCD). Pain is the hallmark symptom of SCD, and health-related stigma is often described during care-seeking for pain management. Few published instruments measure health-related stigma in individuals with SCD. This study builds on the psychometrics of the 30- and 40-item Sickle Cell Disease Health-Related Stigma Scale (SCD-HRSS). In a sample of 197 adults with SCD, the results support the reliability and validity of a 21-item scale, the SCD-HRSS-Short Form, with an overall Cronbach’s alpha reliability of 0.91 and discriminant validity with the PROMIS-29 subscales (anxiety, depressive symptoms, pain interference, physical fatigue, sleep, and role satisfaction). A shorter yet reliable and valid scale may decrease the burden for this underrepresented, minoritized population while still providing important information regarding their experiences of stigmatization. |
| Databáze: | OpenAIRE |
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