Strategies for Recruiting Women Living with Human Immunodeficiency Virus in Community-Based Research: Lessons from Canada
Autor: | Kerrigan Beaver, Micaela Pereira Bajard, Kayla Mitchell, Valerie Nicholson, Brigitte Ménard, Allison Carter, Danièle Dubuc, Mona Loutfy, Alexandra de Pokomandy, Karène Proulx-Boucher, Claudine Gasingirwa, Kath Webster, Angela Kaida, Nadia O’Brien, Erin Ding |
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Jazyk: | angličtina |
Rok vydání: | 2018 |
Předmět: |
Adult
medicine.medical_specialty Canada Community-Based Participatory Research Health (social science) Inservice Training Sociology and Political Science Adolescent Substance-Related Disorders MEDLINE Human sexuality HIV Infections Trust Indigenous Education 03 medical and health sciences Young Adult 0302 clinical medicine Acquired immunodeficiency syndrome (AIDS) medicine Ethnicity Humans 030212 general & internal medicine Young adult Personnel Selection Reproductive health 030505 public health Sex Workers business.industry Age Factors General Medicine Middle Aged medicine.disease Outreach Family medicine Women's Health Female 0305 other medical science business Psychology Sexuality Cohort study |
Zdroj: | Scopus-Elsevier |
Popis: | Objectives: This study sought to describe the recruitment of women living with HIV (WLWH) into the community-based Canadian HIV Women's Sexual and Reproductive Health Cohort Study (CHIWOS), because women are under-represented in HIV research. Methods: There were 1,424 WLWH were enrolled from British Columbia, Ontario, and Quebec, who completed detailed questionnaires administered by peer research associates (PRAs; WLWH with research training). During screening, participants were asked: "How did you hear about the study?" We describe recruitment strategies by subpopulation and offer reflections on challenges and successes. Results: Of 1,131 participants with complete data, 40% identified as White, 33% African/Caribbean/Black, and 19% Indigenous. The median age was 45 years (interquartile range, 37–51) and 4% identified as trans women. Overall, 35% were recruited through PRAs/peers, 34% clinics, and 19% AIDS service organizations (ASOs). PRAs/peers were the predominant recruitment method in Ontario (49%), compared with clinics in British Columbia (40%), and Quebec (43%). Nationally, PRAs/peers were more successful in recruiting WLWH commonly considered to be "harder to reach" (e.g., women identifying as trans, using drugs, not receiving HIV care). Clinics were more effective in recruiting younger women (16–29 years) and women not using ASOs. Recruitment challenges centered on engaging these harder to reach women. Successes included hiring PRAs who built participant trust, linking with clinics to reach women isolated from HIV communities, involving outreach workers to engage street-involved women, and disseminating study information to diverse stakeholders. Conclusions: Having multiple approaches, engaging a diverse team of PRAs, ensuring flexibility, and cultivating reciprocal relationships with community stakeholders were key to recruiting a diverse and representative sample of WLWH. |
Databáze: | OpenAIRE |
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